Rare Disease UK (http://www.raredisease.org.uk/) is using Rare Disease Day to raise political awareness and to ask politicians to support the UK Strategy for Rare Diseases. RD-UK has produced a set of template letters for you to adapt. There is room in the letter to inform them TSC, so please do take the opportunity to do so. We would be interested in hearing if you get a response from your politician.
If you live in England…
Please contact your local MP to ask him/her to attend the Westminster reception to mark Rare Disease Day 2014.
Download template letter for England
You can contact your MP by post or email. An easy way to contact your MP is through www.writetothem.com
If you live in Scotland…
Please contact your MSPs to ask them to attend the reception at the Scottish Parliament to mark Rare Disease Day 2014.
Download template letter for Scotland
You have 8 MSPs in total, 1 constituency MSP and 7 regional MSPs. An easy way to email all of your MSPs in one go is through www.writetothem.com – select “write to all your MSPs” after putting in your postcode.
If you live in Wales…
Please contact your Assembly Members to ask them to attend the reception at the Welsh Assembly to mark Rare Disease Day 2014.
Download template letter for Wales
You have 5 AMs in total, 1 constituency AM and 4 regional AMs. An easy way to email all of your AMs in one go is through www.writetothem.com – “write to all your AMs” after putting in your postcode.
If you live in Northern Ireland…
Please contact your MLAs to draw their attention to the 2014 Rare Disease Day event.
Download template letter for Northern Ireland
There are 6 MLAs representing each constituency. An easy way to email all of your MLAs in one go is through www.writetothem.com – select “write to all your MLAs” after putting in your postcode.
