Meet the TSA support line advisers
Get to know Mega and Anna, our friendly support line advisers
Our small and friendly Support and Information team is here for the Tuberous Sclerosis Complex (TSC) community, helping you overcome any hurdle with their passion, understanding and knowledge.
Mega and Anna, our support line advisers, are on the other end of the Tuberous Sclerosis Association (TSA) support line if you choose to ring, email or send a letter.
Here, you can find out a bit more about Mega and Anna, and why they are passionate about supporting the TSC community.
“Hello to everyone in the TSC community! I’m Anna and I’m a Support Line Adviser at the TSA.
I have worked in a range of information roles and have also written for various publications, all of them focused on disability, health and wellbeing – my specialisms for many years. I have been a support line contact for another health charity for the past four years, giving me an insight into how best to support people living with complex health conditions, like TSC.
I am also on a steering group for research projects into healthcare, which has allowed me to help ensure that the voices of people living with different conditions are heard.
My hobbies include exploring the amazing countryside near where I live in Derbyshire, enjoying a good book with a cup of tea (I’m a big bookworm!) and visiting cute animals at a nearby farm – I love seeing the goats as I’m an animal lover. I even have a house rabbit called Freddie, who keeps me busy!
I am very excited to be a part of the TSA team and to be a part of delivering the charity’s objectives of providing help for today and a cure for tomorrow.
But, most importantly, I’m looking forward to supporting people whose lives are affected by TSC and being a listening ear on the support line. I’m also excited to meet some of you at upcoming TSA events.”
“I understand the importance of being able to access timely and relevant information and support, especially when times are difficult. My passion and expertise for supporting people is why I decided to join the TSA.”
“Hello everyone! My name is Mega.
I have worked in the helpline sector for the last 14 years, starting out as a volunteer with a local domestic and sexual abuse support charity based in Leicester. There, I provided both practical and emotional support on a helpline and eventually progressed into a managerial position overseeing the development and the delivery of their helpline services.
As a trained support line advisor, I find it very empowering to be able to offer support and, at the same time, provide holistic and practical information to community members. Through a combination of active listening and offering information, I can hopefully help people to overcome or better deal with issues at hand.
I am also a qualified trainer, specialised in designing and delivering a wide range of communication skills training to organisations within the helplines sector. Organisations I have trained include health charities such as Marie Curie and Alzheimer’s Research UK and Ireland as well as broader support organisations such as Citizens Advice, NHS Foundation Trusts and Healthwatch England. Working with such a range of groups and organisations has provided me with a valuable insight into how health and social sectors can have a positive impact on individuals and families.
On a personal level, I am a mum of a little boy who has a rare medical condition. Although he is managing it well, there were times when, as a parent, I felt that I was lacking support – I was constantly on the lookout for symptoms and side effects, feeling very alone, and not knowing how to digest the knowledge of it all. These personal experiences have allowed me to empathise with the needs and concerns of people living with a rare condition, and those close to them.
Outside of work, when I am not busy cleaning, home organising and doing the children’s school and weekend club runs, I enjoy travelling and visiting places around the Midlands with my family.”
“Through a combination of active listening and offering information, I can hopefully help people to overcome or better deal with issues at hand.
I find it very empowering to be able to offer support and, at the same time, provide holistic and practical information to community members… personal experiences have allowed me to empathise with the needs and concerns of people living with a rare condition, and those close to them.”
£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.
£25 Can help us develop materials that are included in our support services, flagship events or campaigns.
£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.
To provide help for today and a cure for tomorrow.