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The Tuberous Sclerosis Association, TS Alliance and The LAM Foundation have come together to proudly organise the TSC Research Symposium 2020

The TSC Research Symposium 2020, taking place Friday 13 November 2020, 15:00 – 18:00 GMT via Zoom, is an important half-day professional research event focused on emerging research around TSC and COVID-19. Ticket information and and agenda can be found below.

The event is targeted towards TSC researchers and clinicians, helping the international community to better understand the impact of COVID-19 on the TSC community and on the condition itself. However, lay audiences are also encouraged to join. .

Plus, immediately after the symposium, a special TSC Early Career Researcher Networking Event will also take place (18:15 – 20:30). The meeting will be split into two sessions, with an opportunity to meet colleagues from around the world, gain insight into career pathways and hear the latest TSC research developments from fellow early career researchers.

The TSC Research Symposium 2020 is taking place in anticipation for the International TSC Research Conference, postponed to June 2021.

TSC Research Symposium 2020 sponsors


Book your place

Tickets can be purchased for the TSC Research Symposium 2020 here.

  • Individual registration for professionals (general) is priced at £25 per ticket.
  • Group registration is priced at £100 per ticket. This is ideal for laboratories, or groups of up to 5 people.
  • Individual registration for community members (lay) is priced at £10 each.

Tickets can be purchased for the Early Career Researcher event here.

Zoom login details will then be emailed to you in good time before the event (please note that Zoom codes will be personalised and valid for one use only).

Working agendas

15:00 – 15:05 Welcome and introductions from Chairs
15:05 – 15:55 Session 1 – Early Learning on COVID-19 and TSC

Community speakers (5 mins each)

US LAM patient about physical and mental impact of having coronavirus – Ms Jennifer Fujikawa (confirmed)

UK individual or carer about the impact of lockdown, shielding and closure of social care and education services during pandemic (TBC)

Invited speakers (15 mins each)

‘TSC, lymphangioleiomyomatosis, and COVID-19: the experience of a TSC clinic in Italy’ – Dr Angela Peron, San Paolo Hospital, Milan and University of Utah (confirmed)

‘mTOR inhibitors in COVID-19: Implications for TSC/LAM patients’ – Dr Nishant Gupta, University of Cincinnati (confirmed)

Moderated Q&A for speakers (10 mins)

15:55 – 16:40

Session 2 – Emerging research on physical aspects of TSC

Introduction from Chairs (5 mins)

Invited speakers (15 mins each)

‘New insights into lung damage in TSC-LAM’ – Professor Simon Johnson, University of Nottingham (confirmed)

‘ Latest renal cysts data’ – Professor John Bissler, The University of Tennessee Health Science Centre (confirmed)

Moderated Q&A for speakers (10 mins)

16:40 – 16:50 Break
16:50 – 17:55

Session 3 – Emerging research on TAND aspects of TSC

Introduction from Chairs (5 mins)

Invited speakers (15 mins each)

‘Emerging research on TAND-related biomarkers and treatments’ – Professor Mustafa Sahin, Harvard Medical School (confirmed)

‘Characterising the cognitive and behavioural profile of infants with TSC’ – Dr Charlotte Tye, Kings College London (confirmed)

‘TANDem: empowering families through technology – an update on year 1’ – Professor Petrus de Vries, University of Cape Town, Professor Anna Jansen, UZ Brussel & Dr Stephanie Vanclooster and Dr Tosca Heunis, Vrije Universiteit Brussel (all confirmed)

Moderated Q&A for speakers (15 mins)

17:55 – 18:00 Round-up, thank you and stay safe (5 mins)

Please note, all speakers and presentation titles are to be confirmed.

18:15 – 18:20 Welcome and introductions
18:20 – 18:30 Carmen Herranz-Ors: LAM (Bellvitge Institute of Biomedical Research, Barcelona, Spain)
18:30 – 18:40 Fabienne Haslam: Molecular biology (University of Manchester, UK)
18:40 – 18:50 Lydia Israel: Coordinated care (St George’s Hospital, UK)
18:50 – 19:00 Dr Mona Hoseini Soflaee: Metabolism (UT Southwestern, USA)
19:00 – 19:10 Dr Jennifer Black: ACT in TSC (University of Bristol, UK)
19:10 – 19:20 Abigail Runicles: Early development (King’s College London/St George’s, UK)
19:20 – 19:30 Laura Geben: Molecular biology (Vanderbilt University, USA)
19:30 – 19:40 Dr Stacey Bissell: Sleep and TAND (University of Birmingham, UK)
19:40 – 19:50 Break and networking
19:50 – 20:25 Career Development session with structured discussion and live polls
20:25 – 20:30 Thank you and close

For questions and comments about the event, please email

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow