How should TSC be explained to siblings?
The Tuberous Sclerosis Association (TSA) recommends that siblings learn about TSC at a pace that they can best understand. It can sometimes be helpful if the whole family can go to hospital appointments to meet staff and have a greater understanding of what happens at the clinic.
Try to answer all questions from siblings honestly. For younger siblings, SCOPE has a great list of story books to help understand a disability.
As siblings become older they can be concerned about the future and what will happen to their brother or sister. This is natural, and it is good if they are included in any discussions about the future care of their brother or sister.