Lead by Professor Petrus de Vries (University of Cape Town) and Professor Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) the TANDem Project brings together a worldwide team of families affected by TSC, researchers and clinicians to provide scientific evidence for greater TAND intervention and treatment.
The two-part project will first focus on the development of a self-report TAND checklist and identification smartphone app, to measure how people are affected by TAND. The second part of the study will investigate the best ways to treat TAND, including agreement on suitable clinical guidelines for TAND.
Following this work in identifying and treating TAND, the TANDem Project will help to prepare a global team of TAND researchers to raise awareness and lead future research into TAND.
The TANDem project is co-funded by the King Baudouin Foundation.