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Information & support
TSC Overview
What is TSC?
Diagnosis
TSC and genetics
Treatment and management
Get help and support
Contact the TSA Support Line
Meet the TSA Support Line Advisers
TSA Support Line feedback form
Carer information and support
How to be referred to an NHS TSC clinic
Find a local NHS TSC clinic
TSA video hub
Access benefits and financial aid
TSA Support Fund
How TSC affects the body
Physical effects
Epilepsy
Brain
Heart
Lungs
Skin
Eyes
Kidneys
Other areas
Wider effects (TAND)
Intellectual ability
TSC-Associated Neuropsychiatric Disorders (TAND)
Sleep problems
Life with TSC
Living with TSC
TSC stories
New diagnosis
Living well
Siblings
Education
Employment
Housing
Holiday and leisure
TSC at different life stages
TSC and family planning
When TSC is suspected or diagnosed during pregnancy
Early years and childhood
Adolescents and transition to adult life
Women’s health
Adult life
Planning for end of life
Bereavement
For professionals
Professionals
Healthcare professionals
UK TSC clinical guidelines
Personal Child Health Record (Red book)
Advice on medicines
Social care professionals
Education professionals
TSC conferences
International TSC Research Conference 2021
Educational materials
TSA professional training courses
BMJ learning modules
Research
How we deliver research
Research governance and policies
Research strategy
Meet your research committee
Common questions about our research
TSA research
TSA-funded research
2022 TANDem seed grant award round
TSC Research Volunteer Network
TS2000: Tracking TSC throughout life
BEE-PP project / BEE study
EDiTS study
CoIN study
The e-SNORE project
ACT in TSC trial
TSC research from other groups
Researchers in focus
TSC conferences
International TSC Research Conference 2021
ITSCRC 2021: Community recap
TSC Research Symposium 2020
Get involved
Our community events
Big Day 2025: Our biggest annual event
Outlook 2025: For adults mildly affected by TSC
TSA Together: Events by the TSC community, for the TSC community
TSA virtual and in-person events
Donate
Donate to the TSA
Gift Aid
How your donations help
Corporate partnerships and giving
Give as you earn with payroll giving
Meet our corporate supporters
Give in remembrance or celebration
Leave a legacy
Fundraise
Take part in a fundraising event
Ways to fundraise
TSA fundraising campaigns
Autumn fundraising ideas
TSA Lottery
TSA Gaming Champion
Fundraising Champions
Join the conversation
Getting to know you: Our ongoing survey
Share your story or expertise
Community groups and other groups
About the TSA
Keep updated
Sign up to our e-newsletter and monthly magazine
News and campaigns
Sign up to receive TSA updates
About us
Mission and vision
Meet your team
History of the TSA
Annual reports
Contact us
Click here to talk to us
Information & support
TSC Overview
What is TSC?
Diagnosis
TSC and genetics
Treatment and management
Get help and support
Contact the TSA Support Line
Meet the TSA Support Line Advisers
TSA Support Line feedback form
Carer information and support
How to be referred to an NHS TSC clinic
Find a local NHS TSC clinic
TSA video hub
Access benefits and financial aid
TSA Support Fund
How TSC affects the body
Physical effects
Epilepsy
Brain
Heart
Lungs
Skin
Eyes
Kidneys
Other areas
Wider effects (TAND)
Intellectual ability
TSC-Associated Neuropsychiatric Disorders (TAND)
Sleep problems
Life with TSC
Living with TSC
TSC stories
New diagnosis
Living well
Siblings
Education
Employment
Housing
Holiday and leisure
TSC at different life stages
TSC and family planning
When TSC is suspected or diagnosed during pregnancy
Early years and childhood
Adolescents and transition to adult life
Women’s health
Adult life
Planning for end of life
Bereavement
For professionals
Professionals
Healthcare professionals
UK TSC clinical guidelines
Personal Child Health Record (Red book)
Advice on medicines
Social care professionals
Education professionals
TSC conferences
International TSC Research Conference 2021
Educational materials
TSA professional training courses
BMJ learning modules
Research
How we deliver research
Research governance and policies
Research strategy
Meet your research committee
Common questions about our research
TSA research
TSA-funded research
2022 TANDem seed grant award round
TSC Research Volunteer Network
TS2000: Tracking TSC throughout life
BEE-PP project / BEE study
EDiTS study
CoIN study
The e-SNORE project
ACT in TSC trial
TSC research from other groups
Researchers in focus
TSC conferences
International TSC Research Conference 2021
ITSCRC 2021: Community recap
TSC Research Symposium 2020
Get involved
Our community events
Big Day 2025: Our biggest annual event
Outlook 2025: For adults mildly affected by TSC
TSA Together: Events by the TSC community, for the TSC community
TSA virtual and in-person events
Donate
Donate to the TSA
Gift Aid
How your donations help
Corporate partnerships and giving
Give as you earn with payroll giving
Meet our corporate supporters
Give in remembrance or celebration
Leave a legacy
Fundraise
Take part in a fundraising event
Ways to fundraise
TSA fundraising campaigns
Autumn fundraising ideas
TSA Lottery
TSA Gaming Champion
Fundraising Champions
Join the conversation
Getting to know you: Our ongoing survey
Share your story or expertise
Community groups and other groups
About the TSA
Keep updated
Sign up to our e-newsletter and monthly magazine
News and campaigns
Sign up to receive TSA updates
About us
Mission and vision
Meet your team
History of the TSA
Annual reports
Contact us
Click here to talk to us
Search for:
Our community events
Luke Langlands
2021-11-19T18:27:23+00:00
Community Events
The TSA community gets together all over the country. Meetings, events and trips all in the name of TSC.
Big Day 2025 – Sat 14 June (Lincoln)
14 June, 2025
Outlook 2025 – Sat 26 April (Glasgow)
26 April, 2025
TSC Art Club: Oct 24
24 October 6:30 pm
-
8:00 pm
TSC and the skin
7 August 6:00 pm
-
7:00 pm
TSC Art Club: July 24
24 July 6:30 pm
-
8:00 pm
TSC Art Club: June 24
27 June 6:30 pm
-
8:00 pm
Transition to adult care
19 June 6:00 pm
-
7:00 pm
Transition to adult care
19 June 6:00 pm
-
7:00 pm
All about fundraising (Wed 12 June, 12:30)
12 June 12:30 pm
-
1:15 pm
TSC Art Club: May 24
23 May 6:30 pm
-
8:00 pm
Big Day 2024 – Sat 18 May (Reading)
18 May
TSC Art Club: April 24
25 April 6:30 pm
-
8:00 pm
Outlook 2024 – Sat 20 April (Cardiff)
20 April
How research happens
17 April 12:30 pm
-
1:15 pm
TSC Art Club: Mar 24
28 March 6:30 pm
-
8:30 pm
Power of attorney and decision making
20 March 10:00 am
-
11:00 am
Meet the TSA Team
28 February 12:30 pm
-
1:15 pm
TSC Art Club: Feb 24
22 February 6:30 pm
-
8:30 pm
TSC and bullying in children
7 February 6:00 pm
-
7:00 pm
TSC Art Club
25 January 6:30 pm
-
8:00 pm
TSC Art Club: Jan 24
25 January 6:30 pm
-
8:00 pm
TSC and LAM
18 January 6:00 pm
-
7:00 pm
Outlook festive special 2023
9 December, 2023 1:30 pm
-
3:00 pm
TSA AGM 2023 – including TSC medicines pipeline
28 November, 2023 6:00 pm
-
7:00 pm
All about Education, Health and Care (EHC) plans with Sunshine Support
22 November, 2023 6:00 pm
-
7:00 pm
St George’s TSC Clinic update 2023
11 October, 2023 6:00 pm
-
7:00 pm
Latest TSC research update
20 September, 2023 6:00 pm
-
7:00 pm
Wales TSC Clinic catchup 2023
9 August, 2023 6:00 pm
-
7:00 pm
Approaches to Behaviours that Challenge in TSC
13 July, 2023 6:00 pm
-
7:00 pm
Belfast TSC Clinic virtual catch-up
15 June, 2023 6:00 pm
-
7:00 pm
Big Day 2023 – Sat 13 May (Manchester)
13 May, 2023
Outlook 2023 – Sat 22 April (Leicester)
22 April, 2023 10:30 am
-
5:00 pm
TSC, epilepsy and the ketogenic diet with Daisy Garland
8 March, 2023 6:00 pm
-
7:00 pm
TSC and pregnancy with Antenatal Results and Choices (ARC)
22 February, 2023 6:00 pm
-
7:00 pm
Wills and future planning with The Money Charity
11 January, 2023 6:00 pm
-
7:00 pm
Virtual Outlook festive special 2022
10 December, 2022 1:30 pm
-
3:00 pm
TSA Annual General Meeting 2022
7 December, 2022 7:00 pm
-
8:00 pm
TSC and music therapy: Session 4
23 November, 2022 6:00 pm
-
7:00 pm
TSC and music therapy: Session 3
16 November, 2022 6:00 pm
-
7:00 pm
TSC and music therapy: Session 2
9 November, 2022 6:00 pm
-
7:00 pm
TSC and music therapy: Session 1
2 November, 2022 6:00 pm
-
7:00 pm
TSC wellbeing and skin problems
5 October, 2022 6:00 pm
-
7:00 pm
Glasgow TSC clinic virtual update 2022
7 September, 2022 6:00 pm
-
7:00 pm
St George’s London TSC clinic virtual update 2022
10 August, 2022 6:00 pm
-
7:00 pm
TSC and neurodivergence
6 July, 2022 6:00 pm
-
7:00 pm
Cardiff TSC clinic update 2022
15 June, 2022 6:00 pm
-
7:00 pm
Respite for carers in the TSC community
11 May, 2022 6:00 pm
-
7:00 pm
Outlook 2022
23 April, 2022 10:00 am
-
4:30 pm
TSC and epilespy
6 April, 2022 6:00 pm
-
7:00 pm
TSC and the kidneys
23 March, 2022 6:00 pm
-
7:00 pm
Belfast TSC Clinic virtual catch-up
10 March, 2022 6:00 pm
-
7:00 pm
Financial wellbeing with The Money Charity
12 January, 2022 6:00 pm
-
7:00 pm
Virtual Outlook festive special 2021
11 December, 2021 3:00 pm
-
5:15 pm
Cardiff TSC Clinic update 2021
8 December, 2021 6:00 pm
-
7:00 pm
Virtual event: TSC and lymphangioleiomyomatosis (LAM)
23 November, 2021 6:00 pm
-
7:00 pm
TSA Annual General Meeting 2021
18 November, 2021 7:00 pm
-
8:00 pm
Virtual event: Introduction to supporting siblings
10 November, 2021 7:30 pm
-
8:30 pm
Virtual event: TSC and its impact on skin
27 October, 2021 6:00 pm
-
7:00 pm
Virtual event: The importance of sleep in children with TSC
2 June, 2021 6:00 pm
-
7:00 pm
Virtual event: A values-based approach to improving mental health (ACT) in TSC
20 May, 2021 6:00 pm
-
7:00 pm
Outlook 2021 virtual meeting
17 April, 2021 1:30 pm
-
4:00 pm
Covid-19 and children with TSC: Q&A special
13 April, 2021 6:00 pm
-
7:00 pm
Northern Ireland Get Together 2021
13 March, 2021 1:00 pm
-
3:00 pm
Epidiolex (cannabidiol) and TSC
8 March, 2021 6:00 pm
-
7:00 pm
In Conversation with Sir David Suchet CBE
18 February, 2021 6:00 pm
-
7:00 pm
Covid-19 vaccines and TSC: Q&A with experts
10 February, 2021 6:00 pm
-
7:00 pm
Women’s health, menopause and TSC: Virtual session
13 January, 2021 6:00 pm
-
7:00 pm
Christmas ‘Book at bedtime’ with Sir David Suchet CBE
11 December, 2020 6:30 pm
-
7:30 pm
Virtual Outlook Festive Special
5 December, 2020 1:00 pm
-
3:30 pm
TSA Annual General Meeting 2020
26 November, 2020 6:00 pm
-
7:00 pm
Latest TSC research update: COVID-19, LAM, renal and TAND
25 November, 2020 6:00 pm
-
7:00 pm
Northern Ireland Get Together Virtual Meeting 2020
12 September, 2020 1:00 pm
-
3:30 pm
Virtual session: Young people, epilepsy and the ‘new normal’
29 July, 2020 6:00 pm
-
7:00 pm
Scottish Get Together virtual meeting 2020
25 July, 2020 1:00 pm
-
3:30 pm
Virtual session: Strategies for better sleep
15 July, 2020 6:00 pm
-
28 July, 2020 7:00 pm
Virtual session: Managing aggression and violent behaviours
24 June, 2020 6:00 pm
-
7:00 pm
Welsh Info Day virtual meeting 2020
6 June, 2020 1:00 pm
-
3:30 pm
Virtual session: Managing anxiety and stress (with Anxiety UK)
27 May, 2020 6:00 pm
-
7:00 pm
Virtual session: TSC carer support and covid-19 (with Carers UK)
20 May, 2020 6:00 pm
-
7:00 pm
Virtual session: TAND and covid-19
15 May, 2020 6:00 pm
-
7:00 pm
Join us at the Outlook virtual meeting on 18 April
18 April, 2020 1:00 pm
-
3:30 pm
Family Fun Day Portsmouth – Tickets now on sale!
14 March, 2020
Big Day 2019
2 November, 2019
Welsh Info Day 2019
28 September, 2019
Scottish Get Together 2019
31 August, 2019
-
7 September, 2019
Family Fun Day 2020
27 July, 2019
Northern Ireland Study Day 2019
25 January, 2019
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