Saturday 3rd October 2026, 10am-3pm
All Wales Medical Genomics Service, Cardiff Edge Business Park, Cardiff, CF14 7YU
Join the amazing Welsh TSC Clinic for a Welsh TSC Support and Information Day. Come along to learn more about a range of TSC topics, grab a tea or coffee and meet with others in the TSC community
Remember, this is completely free to attend. Everyone affected by TSC is welcome, even if you live outside of Wales.
Welsh TSC Support and Information Day
Date: Saturday 3 October, 10:00am–3:00pm
Venue: All Wales Medical Genomics Service, Cardiff Edge Business Park, Cardiff, CF14 7YU
Event Summary
The Welsh TSC Support and Information Day will bring together individuals and families affected by TSC, healthcare professionals, support organisations and researchers for a day of information, support and networking.
Provisional Programme
10:00–10:30 – Registration, refreshments, networking and information stands/leaflets
10:30–10:45 – Welcome and introduction
10:45–11:45 – Rapid Updates and Q&A:
-Treatments
-Epidiolex – TSC MDT
-Hyftor – TSC MDT
-Epilepsy developments – Epilepsy Specialist Nurse/Dr Saxena
-TSC Research (Andy Tee, Mark Davies)
11:45–12:15 – Patient-focused presentations
-TSC Padlet – TSC MDT
-Seizure detection, monitoring and risk reduction equipment and resources – Epilepsy Specialist Nurse
-LD Support in hospital (LD Liaison Nurse) – TBC
-TAND Resources – TSC MDT
12:15–1:15 – Lunch and networking
1:15–2:00 – Support and information sessions
-Navigating the Education System – facilitated discussion – Dr Zoe Moss, Clinical Psychologist
-TBC
2:00–2:30 – Open MDT Q&A
2:30–3:00 – Networking
Information and Support Stands, including the TSA
Wales Clinical Staff on hand to talk:
Clinical Nurse Specialist, Genetic Consultant, Neurologist and Clinical Psychologist available throughout the day.