The eSNORE project, which is exploring the relationship between TSC and sleep, is underway at the University of Birmingham.
How to get involved with the eSNORE project
For more information on the study, watch this short video below, where Dr Stacey Bissell and her team show you exactly what is involved in taking part in this research study.
What is the eSNORE project?
Sleep is an important part of our everyday lives. Sleep and it’s impact on waking hours is an important research area globally. Sleeps impact on overall wellbeing has been proven. However, there is currently limited research into the relationship between sleep and its effect on TSC related symptoms such as seizure severity and physical symptoms associated with pain.
Exploring Sleep in Neurodevelopment disorders through Online and Remote Evaluation (eSNORE) is a project which hopes to enable us to gain a better insight into sleep problems in TSC , how it can impact behaviours and ways of managing symptoms associated with sleep problems.
How to get involved in the eSNORE project
There are two separate studies taking place within the eSNORE project. This will allow researchers to get a wider range of participants. You do not have to participate in both studies. Study one is a questionnaire focusing on behavioural patterns in children living with TSC and study two is an interactive study of sleep characteristics, which also involves a questionnaire as well as using an app to record sleep activity and an actiwatch to monitor movement.
The eSNORE project is open to everyone in the UK caring for a child who is aged between 4-15 years of age.
£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.
£25 Can help us develop materials that are included in our support services, flagship events or campaigns.
£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.
To provide help for today and a cure for tomorrow.