UK clinical guidelines for TSC

Background, information and download links for the UK clinical guidelines for the diagnosis, care and management of TSC

The first ever UK clinical guidelines for TSC in the NHS were recently published by Oxford University Press in QJM: An International Journal of Medicine.

Publication of the UK TSC clinical guidelines was a defining moment in the diagnosis, treatment and management of people living with TSC.

The UK clinical guidelines are helping to drive improvements in the consistency and quality of care that people with TSC receive from the NHS.

The TSA’s summary of the UK clinical guidelines

To encourage uptake of the recommendations enclosed within the UK TSC clinical guidelines, the TSA have developed a clinician summary of the key takeaways from the main guidelines.

The TSA’s summary of the UK clinical guidelines can be downloaded here.

Our summary has been widely shared across UK TSC clinics, with clinicians across all healthcare settings encouraged to use our clinical guidelines summary to improve care of people living with TSC.

The TSA have also shared the clinical guidelines, in full, with the TSC community. This will help the TSC community consider how the clinical guidelines relate to their own individual clinical circumstances and help to structure any questions regarding their care that they might have.

Easy read version of the TSA’s summary of the UK clinical guidelines

An easy read version of the TSA UK clinical guidelines summary, written in plain and simple English, is also available. The UK clinical guidelines easy read was developed so that the recommendations in the guidelines can be accessible to as many people in the community as possible.

The easy read version of the TSA UK clinical guidelines summary can be downloaded here.

Do you have questions or comments about the UK TSC clinical guidelines, or the TSA’s guidelines summaries?Please email Dr Pooja Takhar (Head of Research) and the TSA research team at: research@tuberous-scerosis.org