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Website terms and disclaimer

Last reviewed: 03 October 2019

The site has been created primarily for visitors in the UK and Northern Ireland.

The information contained on this website is intended for information purposes only. It is not intended, nor does it, constitute medical or other advice. We do not promote or recommend any treatment, course of action or institution and we do not accept advertising on our site. The website content is not influenced by any sponsors or funders.

This website is not a substitute for professional medical advice. Always seek your own medical advice before taking, or refraining from taking, any action or treatment.

Every effort is taken to ensure the information’s accuracy but no guarantee of accuracy can be given.

Medical information changes rapidly. We make efforts to update the content on the site but some information may be out of date.

We do not knowingly reproduce inaccurate or libellous material. Individuals and organisations referred to by us do not necessarily endorse this reference.


The TSA freely gives permission to reproduce original, unmodified material from our website for non-commercial purposes. Please credit this: “Reproduced from the Tuberous Sclerosis Association” with a link to our website ( Permission to reproduce other materials must be solicited from the original copyright owners.

External Links

All links from this website are provided for information only. We cannot accept responsibility for the sites linked to or the information found there. A link does not imply an endorsement of a site.

Opinions from third-parties

All views posted on this website, included in films, audio files and personal stories, are the views of the individual and not the views, policy or advice of the TSA. Any reference to third party organisations, their product/s or service/s does not imply endorsement by the TSA.

Website access and safety

We cannot guarantee that use of this site will be uninterrupted or error-free, or that the site and its servers are free of computer viruses, trojans or glitches.

Website contact details

For comments or questions about this website contact us by emailing, telephoning 0300 222 5737 or writing to The Tuberous Sclerosis Association, Unit 56, 1 Emma Street, London, E2 9FP.

To provide help for today and a cure for tomorrow