Contact our support team
The TSA is here for everyone in the TSC community, including people living with the condition, family members/loved ones and professionals.
At whatever stage you are in your own unique Tuberous Sclerosis Complex (TSC) journey, we can offer you support on a wide range of TSC-related subjects.
The Tuberous Sclerosis Association (TSA) helps support people all around the UK who are affected by TSC.
A source to ask questions and confide, you can talk to us about any TSC-related topic including first steps following a recent diagnosis, outreach for emotional support or help with filling out a benefits form.
Through our support service team, active online community and flagship annual events, you should never feel alone with a TSC diagnosis.
The TSA is in a time of transition as we build up to the launch of our new support service in January 2020. The changes to our support services include asking our advisers to move away from focusing on specific regions to instead supporting the TSC community UK-wide, in anticipation of the new service launch.
Between now and 2020, anyone wishing to speak to a TSA advisor should contact Rachael Wyartt (Head of Information and Support) via Rachael.Wyartt@tuberous-sclerosis.org or 0300 222 5737.
Rachael will log all enquiries and direct them to the TSA’s Support and Information Services team to respond, who have many years of experience in working directly with the TSC community.
How will the TSA’s support services be different from 2020?
From 2020 onwards, anyone wishing to access the TSA’s support services will be able to do so through a free and confidential central support service, including a support line that will be open 9am – 5pm Monday – Friday.
Although this means transitioning away from our current regional adviser setup, the new support service allows the TSA to deliver sustainable, consistent and high-quality support to the ever-growing TSC community for many years to come.
The TSA wants to help everyone understand what to expect from our future support services.
To be as open and transparent as possible, we have provided an overview of what our community can expect once the new central support service is live, available here.
Help and support with legal issues
The TSA’s support team is not able to offer advice or information on legal issues. However, there is help available from a range of sources about legislation, lasting power of attorney and legal welfare.
The Office of Public Guardian provides information and the sources on a range of legal issues, including lasting power of attorney.
The Court of Protection makes decisions on financial or welfare matters for people who can’t make decisions at the time they need to be made.
Charities and other voluntary organisations, such as Disability Rights UK and Cerebra, also offer guides and advice on legal issues
£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.
£25 Can help us develop materials that are included in our support services, flagship events or campaigns.
£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.
To provide help for today and a cure for tomorrow.