Carer information and support2020-06-02T11:20:58+01:00
Print Friendly, PDF & Email

Carer information and support

Many people living with TSC rely on carers to help them every day 

Often unpaid and overworked, the tireless work of carers in the TSC community should never be ignored or underestimated.

If you are a carer for someone living with TSC, or know someone who is, it is important to make sure that you also get the information and support that you deserve.

There are many routes to accessing carer support and by doing so you can continue to ensure that those around you get the help that they need.

TSC carer support during extraordinary times

The TSA hosted the virtual session ‘TSC carers support and covid-19’ during the coronavirus outbreak, featuring insights and participation from Carers UK.

Although the session focuses on covid-19, the advice and discussions in the session would be useful during any time of particular strain for carers in the TSC community.

TSA support team

The TSA support team can help you with a wide range of care support advice, including accessing benefits for carers, identifying respite care and receiving emotional support.

Contact details for our support team can be found here.

Carer support charities


A mental illness organisation with a tailored Carers Hub focused


Cerebra is dedicated to supporting children living with brain conditions,

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.