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Support line confidentiality statement

The TSA Support Line is confidential. This means we will not share any of your personal details or anything you tell us outside of the TSA, without your permission, apart from in exceptional circumstances. These exceptional circumstances where we may need to share your details with a third party include:

  • A person is at risk of harm
  • A terrorist threat is made
  • We are ordered to share information by law for example, for a court case
  • A caller is continuously abusive towards staff

If a decision is made to share your details with a third party without your permission in these exceptional circumstances, we will make every effort to keep you informed.

When you call or email us, we may ask for your name, but you may remain anonymous if you wish. If you telephone the Support Line, this will not show up on your phone bill. We will be able to see your telephone number, which will be kept confidential in the TSA, but if you wish to remain completely anonymous, you can dial 141 before the Support Line number.

If you email us, we will be able to see your email address, which will also be kept confidential within the TSA. If you would prefer to remain completely anonymous, you could set up another email account. We keep a record of contacts to the Support Line on our secure database, so that we can continue to support you if you contact us again in the future. We also record demographic information, so that we can improve our services by ensuring that we reach all people living with and affected by TSC in the UK. These demographic statistics do not include any personally identifiable information.

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow