Find a local NHS TSC clinic
Information and contact details for NHS TSC clinics across the UK
There are NHS TSC clinics across the UK, with specialist clinicians and researchers in each who understand the impact that living with TSC can have on individuals and families.
NHS TSC clinics are run by TSC specialist doctors and nurses who volunteer to work at their NHS TSC clinics in addition to their day jobs. Each NHS TSC clinic depends on funding from specialised services. Each clinic will have a limited number of appointments each month. What you experience at an NHS TSC clinic will vary depending on which clinic you are referred to.
Here, we have provided a run-down of the different clinics, including contact details, to help facilitate referrals.
Click the clinic that you are interested in via the drop-down menu below.
If there isn’t a local NHS TSC clinic in your area, you can ask your GP to refer you to your local genetics clinic. Most clinical genetic services have a professional who oversees patients with TSC, which means they may have a certain level of TSC expertise. They may also be able to refer you on to the nearest NHS TSC clinic as necessary.
England
Type of clinic: Adults and children
Location: Bath
Address: Tuberous Sclerosis Complex Team, Children’s Centre, Royal United Hospital Bath, Combe Park, Bath, BA1 3NG
Clinic lead(s): Prof Finbar O’Callaghan and Dr Ron Loh
Referral pathway: E-referral for local referrals or by letter via GP or any specialist
Contact: Ms Charlotte Reed
Tel: 01225 821 545
Email: charlottereed1@nhs.net
Website: Click here
Type of clinic: Children only
Location: Birmingham
Address: Birmingham Children’s Hospital, Steelhouse Lane, Birmingham, B4 6NH
Clinic lead(s): Dr Shakti Agrawal and Dr Larissa Kerecuk
Referral pathway: Letter or email via GP to secretaries
Contact: Hannah Buxton
Tel: 01213 338 704
Email: karenquinn1@nhs.net or h.buxton1@nhs.net
Type of clinic: Adults only
Location: Birmingham
Address: Ground Floor, Heritage Building, Queen Elizabeth Hospital Birmingham, Mindelsohn Way, Edgebaston, Birmingham, B152QW
Clinic lead: Dr Graham Lipkin
Referral pathway: Via GP or consultant. Preferred that initial scanning to be done pre-clinic referral
Contact: Emily Cooper
Tel: 01213 718 707
Email: emily.cooper@uhb.nhs.uk
Website:Â Click here
Type of clinic: Children only
Location: Bristol
Address: Paediatric Neurology, University Hospitals Bristol NHS Foundation Trust, Education Centre, Level 6, Upper Maudlin Street, Bristol, BS2 8AE
Clinic lead: Dr Sam Amin
Referral: Clinic letter from any treating clinicians or GP
Contact: Sally Smith (secretary)
Tel: 0117 3420167
Email:Â sally.smith@uhbw.nhs.uk
Website:Â Click here
Type of clinic: Children
Location: Cambridge
Address: Child Development Centre, Box 107, Addenbrooke’s Hospital, Cambridge, CB2 2QQ
Clinic Lead: Dr Alasdair Parker
Referral pathway: To Dr Alasdair Parker via the local paediatrician
Tel: 01223 216 662
Type of clinic: Adults
Location: Cambridge
Address: Box 165, Addenbrooke’s Hospital, Cambridge, CB2 0QQ
Clinic Lead: Dr Anke Hensiek
Referral pathway: Via GP to the local specialist in the area and if the issue can’t be dealt with, then onward referral to the specialist team (remote meeting every six months) at Addenbrookes
Tel: 01223 217603 (Secretary: Sharon Fryer)
Email:Â ahensiek@nhs.net
Type of clinic: Children only
Location: Leeds
Address: Children’s Outpatients, C Floor Martin Wing, Leeds General Infirmary, Great George Street, Leeds, LS1 3EX
Clinic lead(s): Dr Helen McCullagh and Dr Eric Finlay
Referral pathway: To Dr Helen McCullagh via GP or local paediatrician
Enquiries: Louise Higgins
Tel: 0113 3928 046, but email contact is preferred
Email: louisea.higgins@nhs.net
Website:Â Click here
Type of clinic: Children only
Location: Liverpool
Address: Paediatric Neurodisability, Alder Hey Children’s NHS Foundation Trust, Eaton Road, Liverpool, L12 2AP
Clinic lead: Dr Zahabiyah Bassi
Referral pathway: Referrals from Consultant Paediatrician responsible for care of the child with TSC preferred. Also accept referrals from other clinicians and GP, but should ensure local paediatrician is aware of the referral or could be rejected. Online referrals preferred (click here for form). Also accept clinical letters to Dr Bassi.
Email: commpaedsqueries@alderhey.nhs.uk
Tel: 0151 252 5972 / 0151 282 4930, Ext 4100
Website:Â Click here
The TSC clinic is held every month and is jointly run by a neurodevelopmental paediatrician, with expertise in: Neurodisability, Paediatric Neurologist, Paediatric Nephrologist, Clinical Psychologist. A Physician Associate is also in attendance, who is the care coordinator for the TSC service.
Type of clinic: Adults only
Location: Liverpool
Address: Tuberous Sclerosis Clinic, Department of Nephrology, Royal Liverpool Hospital University Hospital Trust, Prescott Street, Liverpool, L7 8XP
Clinic lead(s): Dr Asheesh Sharma and  Dr Christine Burness
Referral: Formally in writing by GP, hospital consultant or other health professional.
Contact: Paula Meah
Tel: 01517063429
Email: paula.meah@liverpoolft.nhs.uk
Website:Â Click here
Type of clinic: Children only
Location: London
Address: Paediatric Neurosciences, Level 2 Becket House, Evelina London Children’s Hospital, Westminster Bridge Road, London, SE1 7EH
Clinic lead: Dr Jill Cadwgan
Referral: Clinic letter from any treating clinicians or GP, must have local secondary care paediatric lead
Contact: Claire Grochocki (secretary)
Tel: 020 7188 4003
Email: claire.grochocki@gstt.nhs.uk
Type of clinic: Adult only
Location: London
Address: Paediatric Neurosciences, Level 2 Becket House, Evelina London Children’s Hospital, Westminster Bridge Road, London, SE1 7EH
Clinic lead: Dr Laura Mantoan
Referral: Clinic letter from any treating clinicians or GP, via post or email
Contact: Margaret Reid (secretary)
Tel: 020 3229 8337
Email: margaret.reid15@nhs.net
Type of clinic: Adults only
Location: London
Address: Renal Genetics Clinic, Royal Free Hospital, Pond Street, London, NW3 2QG
Clinic lead: Dr Daniel Gale
Referral: Via GP, nephrologist, neurologist or paediatrician
Email: RF.TSC@nhs.net
Type of clinic: Adults and children
Location: London
Address: SW Thames Regional Genetics Service, St George’s University of London, Cranmer Terrace, London, SW17 0RE
Clinic lead: Dr Frances Elmslie (Consultant Clinical Geneticist)
Referrals: By letter or electronically to dedicated email from GPs, primary, secondary or tertiary care
Contact: Ms Lydia Israel (TSC Nurse Specialist)
Tel: 020 8725 1688
Email: TSCreferrals@stgeorges.nhs.uk
Website: Click here
Type of clinic: Adults and children
Location: Manchester
Address: Manchester Centre for Genomic Medicine, Sixth Floor, Saint Mary’s Hospital, Oxford Road, Manchester, M13 9WL
Clinic lead: Dr Liz Jones (Consultant Clinical Geneticist)
Referral: To Dr Liz Jones via the GP, medical specialist, specialist nurse or healthcare professional in the North-West region
Tel: 0161 701 5104
Website:Â Click here
Type of clinic: Adults and children
Location: Newcastle
Address: Paediatric Outpatient Department, Great North Children’s Hospital, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP
Clinic lead(s): Dr Yincent Tse (Paediatric Nephrologist) & Prof John Sayer (Nephrologist)
Referral: To Dr Yincent Tse
Tel: 0191 282 4917
Email: yincenttse@nhs.net
Type of clinic: Adults and children
Location: Nottingham
Address: Department of Clinical Genetics, City Hospital Campus, The Gables, Gate 3, Hucknall Road, Nottingham, NG5 1PB
Clinic lead: Dr Jaqueline Eason (Consultant in Clinical Genetics). Dr Rana Mohamed, Paediatric Neurologist at Queen’s Medical Centre (Nottingham University Hospitals) is working in partnership with the genetic team. Referrals may be directed to Dr Mohamed if appropriate.
Referral: Written referral to Dr Jacqueline Eason from any health professional
Contact: Janine Bowes (Genetic Counsellor)
Tel: 0115 962 7728
Email:Â nuhnt.clinicalgenetics@nhs.net
Website:Â Click here
Type of clinic: Adults and children
Location: Sheffield
Address: Sheffield Kidney Institute, Sorby Renal Outpatient Department, Northern General Hospital, Herries Road, Sheffield, S5 7AU
Clinic lead: Dr Roslyn Simms (Consultant Nephrologist)
Referral pathway: Electronic referral service by GP or by email
Tel: 01142 715 326 or 01142 714 410
Contact: Sister Janet McCormick (Renal Nurse Specialist)
Website:Â Click here
Please note: Nephrology clinic only but can refer onto appropriate specialists where required
Type of clinic: Adults and children
Location: Cornwall
Address: Truro is an outreach clinic held by the local learning disability team in Threemilestone
Clinic leads: Prof Finbar O’Callaghan and Dr Ron Loh
Referral pathway: All referrals and correspondence come via the Bath TSC clinic. E-referrals for local referrals, or letter by the GP or any medical specialist
Tel: 01225 821 545
Email: charlottereed1@nhs.net
Referral: GP or any specialist involved in the person’s care can refer. E-referral for local referrals or by letter. Referrals should be made out to Bath clinic address.
Held by local learning disability team in Threemilestone (Prioritise patients with LD who may be less able to travel to Bath).
Type of clinic: Adults only
Location: York
Address: Tuberous Sclerosis Clinic, Neurology Department, York Teaching Hospitals NHS Foundation Trust, Wigginton Road, YO31 8HE
Clinic lead: Dr Clare Johnston (Consultant Neurologist)
Tel: 01904 725 754
Northern Ireland
Type of clinic: Adults and children
Location: Belfast
Address: Belfast City Hospital, 51 Lisburn Road, Belfast, BT9 7AB
Clinic lead: Dr Deirdre Donnelly
Email: deirdre.donnelly@belfasttrust.hscni.net
Referral: GP, hospital doctor, midwife, self-referral all accepted – to be sent to Dr Deirdre Donnelly
Tel: 07909538792
Scotland
Type of clinic: Child and adult
Clinic lead: Dr Shelagh Joss
Email: Shelagh.Joss@ggc.scot.nhs.uk
Telephone: 0141 354 9222
Location: Glasgow
Referral: Clinic letter from any treating clinicians or GP
Address: Clinical Genetics Outpatient Dept, Level 1, Laboratory Medicine Building, Queen Elizabeth Hospital, Glasgow, G51 4TF
Clinic lead: Dr Shelagh Joss
Wales
Type of clinic: Adults and children
Location: Cardiff
Address: All Wales Medical Genomics Service (AWMGS), Institute of Medical Genetics, Cardiff and Vale UHB, Heath Park, Cardiff, CF14 4XW
Clinic lead: Dr Jennifer Gardner (Consultant Clinical Geneticist)Â
Referral pathway: Via GP or other specialist to Dr Jenny Gardner
Contact: Karen Bailey (TSC Clinical Nurse Specialist)
Email: se.genetics@wales.nhs.uk
Tel: 02921 847451
Website:Â Click here
Please note: The phone numbers noted on the ‘contact us’ section of the website are for Swansea, Cardiff and North Wales. The clinic is currently looking into organising a generic email address for the service, which will be updated as soon as more details are received.
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