Louise Fish is to join the Tuberous Sclerosis Association (TSA) as its new Chief Executive.

Louise, a former Director of Communications at NICE, Director of Communications and Engagement at the NHS Confederation and,most recently, a Senior Director
with Tonic Life Communications, will join the TSA on 5 June.

The TSA is currently celebrating its 40th anniversary and Louise will be the organisation’s second CEO, following on from Dr Jane Spink, who is about to
join Genetic Alliance UK as their Chief Executive.

Speaking about her appointment Louise said: “The TSA has had some amazing successes in improving research, care and support for individuals living with
TSC over the past few years, and I am excited about working with everyone to build on them. I’m looking forward to bringing my passion and experience
to the staff team, and working with the TSC community to further improve research, care and support for everyone affected by TSC. My focus is to make
sure that everything the TSA does supports the community’s vision of providing hope for today and a cure for tomorrow.”

Martin Short, Chair of the TSA Trustee Board, said: “I am delighted that our search for our second CEO has led us to Louise. She has a wealth of experience
that is relevant to leading the TSA and I am confident that she will take us forward with vision and sensitivity. Louise has a passion for communities
like ours and I am sure there will be exciting developments ahead as she builds on Jayne’s work.

“We are grateful to Jayne for an unparalleled period of transformation, growth, development and achievement within the TSA. Her distinctive place in our
40 year history is assured.”

Louise has produced a short video for the TSC community which can be viewed on YouTube here: https://www.youtube.com/watch?v=MvX9lHHbeOQ

Louise will start work at the TSA on Monday 5 June and can be contacted thereafter on: louise.fish@tuberous-sclerosis.org

And for more information about the TSA please go to www.tuberous-sclerosis.org




For further information, please contact:

Sarah Roberts, Tuberous Sclerosis Association

Email: sarah.roberts@tuberous-sclerosis.org

Tel: 07870 210308


Photo Captions:

Louise Fish, incoming CEO of the TSA



Notes to Editors:

Tuberous Sclerosis Complex (TSC) is a genetic disorder that causes growths to form in many different organs, primarily in the brain, eyes, heart, kidney,
skin and lungs. Some people with TSC experience epilepsy, developmental delay, learning and other disabilities, autism and challenging behaviour.

The Tuberous Sclerosis Association (www.tuberous-sclerosis.org) is the only UK charity dedicated to supporting people affected by TSC.  The charity has
invested over £10 million in support services and medical research.