It is with great sadness that the TSA must announce the passing of Tom Carter, TSA Trustee and Lifetime President, following a short illness

Tom was a vital member of the TSA team, from the charity’s early years right through to the present day. Tom held various important positions within the charity and can be credited with being one of the reasons that the TSA developed into the charity that it is today.

Tom and his wife Anne’s incredible drive to improve the lives of people with TSC started with the TSC diagnosis of their daughter, Sally. There is now a gap left by Tom in the TSC community and at the TSA that will never be filled.

Luke Langlands (TSA Joint Chief Executive) commented: “Tom embodied the spirit, fight and determination of all individuals and families affected by TSC. Working so closely with someone who had such history with the charity was always a pleasure. As a Trustee, Tom provided us with great expertise as well as a direct connection to the TSC community.”

A larger obituary fitting of Tom’s longstanding history and role in the TSC community and TSA will be shared very soon.