The global coronavirus (covid-19) pandemic is continuing to affect all aspects of daily life, including at the TSA. Our amazing charity, committed to improving the lives of people affected by TSC across the UK, has been assessing the effects of the spread of coronavirus on our immediate priorities and financial security.

The TSA’s Board of Trustees and senior management team have made some tough but important decisions about the charity’s short-term goals and the team’s working patterns, to help us get through the coronavirus outbreak.

How have the TSA’s short-term priorities changed?

The TSA’s 2020 Business Plan has been temporarily put on hold, and the charity will focus on these critical areas:

  • Providing support and information to the TSC community, during this unprecedented time of uncertainty
  • Offering innovative ways for the TSC community to come together, such as through video conferencing and online groups
  • Safeguarding the long-term survival of the charity, as our income from community fundraising and investments fall due to financial pressure from the virus

How has the TSA team’s working patterns changed?

Almost half of the TSA’s small team has been temporarily placed on the UK Government’s furlough scheme, which was set-up to help organisations survive the covid-19 pandemic. It means that these members of staff will not work during the pandemic, and the TSA will claim 80 per cent of their salaries back from the Government.

Of the TSA staff that continue to work, those that are usually contracted full-time have voluntarily agreed a reduction in their weekly hours and salary.

Our Support Line Advisers are still working hard to support everyone who needs help and information during this challenging time, and you can contact them as usual by telephoning 0808 801 0700 or by emailing support@tuberous-sclerosis.org.

Every TSA staff member is vital in helping the charity to reach our long-term goals. The decision to furlough staff was made because our immediate priorities have changed significantly as a result of coronavirus, and the temporary furloughing of staff can help the TSA to survive the financial impact of the pandemic.

We eagerly anticipate welcoming back our fantastic colleagues, so that they can continue to help us with their great work.

The TSA continues to be here for you and all other members of the TSC community at this time.

How you can help

The TSA receives no government funding and is reliant on the generosity of amazing donors.

If you are able to during this period, the best way to support us is to kindly give a regular monthly donation (or increase your current gift if you can afford to do so).

By doing so, you will improve the lives of people affected by TSC by ensuring the TSA can survive the pandemic and plan for the future.

To set up a regular donation, visit www.tuberous-sclerosis.org/donate.

The TSA and TSC community can get through this time of uncertainty by coming together and working hard for each other.

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.