PEOPLE with Tuberous Sclerosis, their carers, friends and family are invited to attend a free meeting on Saturday, March 12 where they can find out more about their condition and the support which may be available to them.

The venue is Hollymoor Centre, 8 Manor Park Grove, Birmingham, West Midlands, England, B31 5ER and the meeting will take place between 11am and 3pm. Refreshments, including lunch, are free of charge.

Mark Portlock, from the Birmingham Carers’ Hub will be speaking at 11.30am and will cover the following topics: 

  • What the Birmingham Carers’ Hub does.
  • How to register at the Hub .
  • Services general available to carers in the Birmingham area.
  • Grants available from the Local Authority and from local charities.
  • Course available to carers on Manual handling/hoist and first aid training .
  • Care assessments from the Local Authority.
  • The Care Act 2014 and how this has increased the rights of carers.
  • The rules the Local Authority has for charging for services.
  • Welfare Benefits for carers and those they carer for .
  • Powers of Attorney and the Court of Protection.

Mark will also be happy to answer any questions from the audience.

And after lunch, at 1.30pm, Dr Lucy Wylde and Stacey Bissell, Research Fellow at the Cerebra Centre for Neurodevelopmental Disorders, Birmingham University, will give a presentation about their research into behaviour and Tuberous Sclerosis Complex.

In addition, Kendra Rhodehouse, TSA Adviser for the Midlands area, will be on hand to offer advice and support to anyone who needs it.

The meeting has been organised by the Tuberous Sclerosis Association, the only charity in the UK dedicated to supporting people with TSC, their families and carers.

Admission is free but numbers are limited so please contact Tanya Darnton on or call her on 02380 730 823 if you would like to attend.