Team TSA are pleased to provide you with the full agenda
for this years’ Big Day, which takes place on Saturday 10 November at Sheffield
Hallam University:

08:45 – 10:00 Registration 

09:15 – 09:45 TSA’s
Annual General Meeting (AGM) 

09:45 – 10:00 Short

10:00 – 10:10 Welcome
to the Big Day 

10:10 – 10:30 Introducing
the TSA’s new 5-year strategy 

10:30 – 11:00 Epilepsy
keynote speech 

11:00 – 11:15 Community
speakers discussing ‘What I wish I’d
known when we first got the diagnosis of TSC’. 

11:15 – 11:45 Tea and
coffee break 

11:50 – 12:50 Morning

– For children (0-12) – ‘Sleep Issues and Practical Strategies’ 

– For adults – ‘Sleep: The Essentials’ 

– Research Spotlight Sessions: 

  • ‘Behaviours in young children with tuberous
    sclerosis complex’ 
  • ‘Early development in Tuberous Sclerosis:
    Initial findings from the EDiTS study’ 
  • ‘We’ve made the best of it, but we don’t
    have a normal life: Families’ experiences of TSC and Seizure Management’ 

1:00 – 2:30      Lunchtime 

1:00 – 2:30      Marketplace

1:30-3:30         One-to-One
Sessions with Clinicians (15 minutes per individual session) 

2:30 – 3:30      Afternoon

– For children (0-12) – ‘Challenging behaviours in children with TSC’ 

– For adults – ‘Breathing Space’ 

– Research Spotlight Sessions: 

  • ‘Research highlights: a new tumour suppressor function of TSC2 and finding a therapy’
  • ‘Investigating the biology of TS cells to
    design new therapies’ 
  • ‘Using the fruit fly to understand
    mechanisms of the TSC pathway’ 

3:30 – 4:00    Research
and Clinical Update 

4:00 – 4:25   Improving
NHS Care: UK Clinical Guidelines for TSC and Everolimus for Epilepsy 

4:25 – 4:30   Thank
you for coming and wishing you a safe journey home

Places are filling up fast, so head over to our Eventbrite
booking page as soon as possible to purchase your tickets:

Why not book a 15-minute, one-to-one session with one of
our six clinicians available on the day? For more information, please go to
To book your slot, please email Bethan at
but be sure to register via Eventbrite first.

12 sleeps and counting. We look forward to seeing you