Team TSA are pleased to provide you with the full agenda
for this years’ Big Day, which takes place on Saturday 10 November at Sheffield
Hallam University:
  

08:45 – 10:00 Registration 

09:15 – 09:45 TSA’s
Annual General Meeting (AGM) 

09:45 – 10:00 Short
break 

10:00 – 10:10 Welcome
to the Big Day 

10:10 – 10:30 Introducing
the TSA’s new 5-year strategy 

10:30 – 11:00 Epilepsy
keynote speech 

11:00 – 11:15 Community
speakers discussing ‘What I wish I’d
known when we first got the diagnosis of TSC’. 

11:15 – 11:45 Tea and
coffee break 

11:50 – 12:50 Morning
workshops: 

– For children (0-12) – ‘Sleep Issues and Practical Strategies’ 

– For adults – ‘Sleep: The Essentials’ 

– Research Spotlight Sessions: 

  • ‘Behaviours in young children with tuberous
    sclerosis complex’ 
  • ‘Early development in Tuberous Sclerosis:
    Initial findings from the EDiTS study’ 
  • ‘We’ve made the best of it, but we don’t
    have a normal life: Families’ experiences of TSC and Seizure Management’ 

1:00 – 2:30      Lunchtime 

1:00 – 2:30      Marketplace
open 

1:30-3:30         One-to-One
Sessions with Clinicians (15 minutes per individual session) 

2:30 – 3:30      Afternoon
Workshops: 

– For children (0-12) – ‘Challenging behaviours in children with TSC’ 

– For adults – ‘Breathing Space’ 

– Research Spotlight Sessions: 

  • ‘Research highlights: a new tumour suppressor function of TSC2 and finding a therapy’
  • ‘Investigating the biology of TS cells to
    design new therapies’ 
  • ‘Using the fruit fly to understand
    mechanisms of the TSC pathway’ 

3:30 – 4:00    Research
and Clinical Update 

4:00 – 4:25   Improving
NHS Care: UK Clinical Guidelines for TSC and Everolimus for Epilepsy 

4:25 – 4:30   Thank
you for coming and wishing you a safe journey home
  

Places are filling up fast, so head over to our Eventbrite
booking page as soon as possible to purchase your tickets: https://www.eventbrite.co.uk/e/tsa-big-day-2018-registration-46281260496
  

Why not book a 15-minute, one-to-one session with one of
our six clinicians available on the day? For more information, please go to https://www.tuberous-sclerosis.org/new-tsa-news/one-to-one-sessions-with-clinicians-at-the-tsa-big-day-information-and-how-to-book.
To book your slot, please email Bethan at bethan.vaughan@tuberous-sclerosis.org
but be sure to register via Eventbrite first.
  

12 sleeps and counting. We look forward to seeing you
there!