A pilot of the upcoming TSA support line will commence on Monday 10 February, in anticipation of the service’s full launch in April 2020.

Any community members contacting the TSA’s support services from Monday 10 February will access the pilot scheme.

As part of the support line pilot, community members will be able to talk to the TSA’s small team of friendly and professional advisers about any TSC-related topic, such as taking your first steps following a recent diagnosis, accessing emotional support during a tough period, or securing a referral from your GP to an NHS TSC clinic.

It is understandable to feel anxious or to have questions about coronavirus and how the virus might affect someone living with TSC.

The TSA is working hard to provide up-to-date, relevant and accurate information, developed in partnership with clinicians from TSC clinics across the UK.

At times like these, communities come together to rally and help one-another. We know first-hand just how incredible the TSC community is in showing support and compassion for one another during difficult periods.

Stay informed, talk to us and join in with the conversation:

When accessing our pilot support line, you can expect:

  • Free and confidential support on any TSC topic
  • Friendly, warm and professional TSA advisers available 9am – 5pm, Monday to Friday
  • A small, dedicated and home-based team that serves only the TSA community
  • Signposting to specialist and local services when additional expert support is needed
  • A team who are trained and knowledgeable about the impact of living with TSC across all four UK nations – England, Scotland, Wales and Northern Ireland

The pilot service has been shaped by feedback, concerns and ideas regarding changes to our support services from the TSC community, received during TSA events, online surveys and telephone focus groups.

The TSA will use the pilot to proactively seek further feedback from service users, ahead of a formal launch for the new support line, expected to be in April 2020.

More information on the support line pilot, how to access our support services and how our support services are changing can be found here and here.

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.