The reason for this survey is to find out  what  people with TSC and their families think of  the TSA.  We  want  to  know whether  we are doing the right things.We  also  want  to  know whether  there  are  things  we  could  do  differently  or  better. We will write a report  showing the results of  the survey and make this available on our website.

No personal information will appear in the report. Everyone’s  responses will be pooled together. Your  comments  may be used in the  report but you  will not be  quoted  in away that might reveal your identity  to  others. We will use the information you share with us to raise awareness of  TSC.
We  also  want  to  use  the  report  to  influence  others,  for  example  to improve services and increase the  amount of money  that goes  into  TSC  research. Whether you have TSC yourself  or are a parent  or carer for someone who does,  we hope you will have your say!  If you are a carer and also have TSC, you  can fill  out a  survey for  yourself as  well as for  the  person you care for  if you  wish.  If  you  care  for  more  than  one  person  with TSC,  you can fill a survey on behalf  of  each person you care for if  you wish.

Download our survey below:


If however you do not have access to the internet or would just prefer to use a paper version thenplease download it from here.
The address to send completed forms is:

Tuberous Sclerosis Association

PO Box 8001

Please make time to share your views.  Your  help will greatly  assist  the  work of  the  TSA.
This survey closes at  midnight  on 31 January 2013.
Thank you for taking part.

Posted on 24th November, 2012