Tuberous Sclerosis Association Survey 2012
The reason for this survey is to find out what people with TSC and their families think of the TSA. We want to know whether we are doing the right things.We also want to know whether there are things we could do differently or better. We will write a report showing the results of the survey and make this available on our website.
No personal information will appear in the report. Everyone’s responses will be pooled together. Your comments may be used in the report but you will not be quoted in away that might reveal your identity to others. We will use the information you share with us to raise awareness of TSC.
We also want to use the report to influence others, for example to improve services and increase the amount of money that goes into TSC research. Whether you have TSC yourself or are a parent or carer for someone who does, we hope you will have your say! If you are a carer and also have TSC, you can fill out a survey for yourself as well as for the person you care for if you wish. If you care for more than one person with TSC, you can fill a survey on behalf of each person you care for if you wish.
Download our survey below:
If however you do not have access to the internet or would just prefer to use a paper version thenplease download it from here.
The address to send completed forms is:
Tuberous Sclerosis Association
PO Box 8001
Please make time to share your views. Your help will greatly assist the work of the TSA.
This survey closes at midnight on 31 January 2013.
Thank you for taking part.
Posted on 24th November, 2012