Our website is packed with information about TSC, as we strive to be the most useful resource available on the condition. We recently updated our page on genetics and TSC

As a rare condition, we know that it can be difficult to find information on TSC. That’s why we’re always working to update our website with the latest content and research about TSC.

This effort is never ‘finished’, as new findings on the condition can change our understanding of the condition. Sometimes, our regular reviews of webpages also shows things that we can change or alter to make the information that we provide better.

One of the most recent updates we’ve done is on the genetics page of our website, making it easier to understand the role of genetics in TSC, what a genetic condition actually is, and how genetic conditions like TSC happen.

With our regular reviews and efforts to keep all information relevant, we hope to make it easier for you to navigate the often challenging world of TSC.

Don’t forget that there’s also the TSA Support Line if you ever want to ask any questions to our friendly support team, or just want a listening ear.

Make a one off or regular  donation

£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow