The Tuberous Sclerosis Association (TSA) is looking for a self-motivated, experienced and effective fundraising manager, who is ambitious about generating income to help people living with Tuberous Sclerosis Complex (TSC) and their families and drive research into this rare genetic condition.

The position is home-based, part-time (21 hours per week) and on a 12-month contract.

You will write compelling proposals and applications to secure significant income from Trusts and Foundations for the TSA’s support services and research projects, co-ordinating input from across the TSA teams. You will prepare and submit high quality and compelling grant and bid applications, draft new cases for support to form a grant and bid library, research and compile prospect lists, develop a clear bid pipeline, keep clear records of bids and outcomes, and review grant and bid decisions to continually improve the TSA’s performance in securing generating income.

You will also research, identify and support opportunities to generate statutory and institutional investment from major funders such as Government departments, grant-making organisations such as Big Lottery and Comic Relief, corporate funds, livery companies and healthcare research funding bodies.

Working as part of a small fundraising team, you will enjoy taking on new challenges and be happy to work flexibly as the TSA develops a balanced portfolio of income across regular givers, trusts and foundations, corporate partners, major donors and legacies.

If you would like an informal discussion about this post, please contact the TSA’s Head of Income Generation Mikaela Conlin-Hulme at mikaela.conlin-hulme@tuberous-sclerosis.org or 07837 781105.

The closing date for this post is 22nd January 2020 and interviews will be held in London W/C on 27th January 2020. Please send a CV and short covering note to admin@tuberous-sclerosis.org by 17.00 on Wednesday 22nd January.

About Tuberous Sclerosis Complex (TSC)

TSC is a genetic condition that can lead to growths in various organs of the body.   It is a rare condition affecting between 3,700 and 11,000 people in the UK.  The organs most commonly affected by growths are the brain, eyes, heart, kidney, skin and lungs.  These growths may be referred to as benign tumours, but they are not cancerous.  When they cause problems, it is mainly because of their size and where they are in the body.

Eight out of ten people living with TSC have epilepsy.  One in every two people have learning disabilities such as intellectual impairment and problems with attention and memory.  Many people living with TSC also have behavioural problems such as autism, ADHD, aggression, depression, anxiety and sleep disorders which can have a serious impact on family life.

There is a wide range of severity in TSC.  Some people living with TSC are so mildly affected that they experience few problems.  Other people living with TSC can be severely affected and need life-long support from their families or live in residential care.

About the Tuberous Sclerosis Association (TSA)

The TSA is the only UK charity dedicated to supporting people living with TSC and their families.  Our vision is a world where TSC and its effects are conquered.  Our mission is to provide help for today and a cure for tomorrow.  Our aims are to: make a positive impact on the health and wellbeing of people living with TSC, their families and carers; lead research into the tools, technologies and treatments which eliminate the effects of TSC; and lead innovation in the integration of medical and social care services.

Job description: Fundraising Manager – Trusts and Foundations

Reports to:Head of Income Generation

Location: Home based, with regular travel within the UK

Hours of work: 21 hours per week (flexible arrangements possible)

Salary: £16,400 (£27,333 full time equivalent)

Type of contract: Twelve-month fixed term

Pension: Non-contributory pension scheme (after six months’ employment)

Holiday: 25 days annual leave, plus 8 bank holidays (pro-rata)

Notice period: One month

The role of the Fundraising Manager – Trusts and Foundations

You are a self-motivated, experienced and effective fundraising manager, who is ambitious about generating income to help people living with TSC and their families and drive research into this rare genetic condition. You will prepare and submit high quality grant and bid applications, draft new cases for support to form a grant and bid library, research and compile prospect lists, develop a clear bid pipeline, keep clear records of bids and outcomes, and review grant and bid decisions to continually improve the TSA’s performance in securing generating income. You will also research and identify opportunities to generate statutory and institutional investment from major funders such as Government departments, grant-making organisations such as Big Lottery and Comic Relief, corporate funds, livery companies and healthcare research funding bodies.

Responsibilities

 Preparing and submitting high quality grant and bid applications

  • Write and edit high quality proposals that are tailored to individual specifications and meet all necessary requirements for grant and bid applications.
  • Complete relevant application forms bid and grant responses.
  • Provide any additional information materials needed to support grant and bid applications such as the five-year strategy, financial statements and impact reports.
  • Proof, double-check for compliance with the rules, and submit all grant and bid applications.

Drafting new cases for support

  • Develop a strong understanding of the TSA’s new five-year strategy, annual business plans and the key strategic projects that will drive their successful delivery.
  • Build strong working relationships with the relevant Heads of each team to get their expert input to scoping, drafting, reviewing and signing off the relevant cases for support.
  • Draft a case for support focused on each key strategic project, and prioritise projects based on those most likely to generate significant income for the charity. Diverse projects seeking funding in year one will include: introducing new TSA support line; web and social media content; regional Family Fund Days; 2020 International TSC Research Conference; TSC Community Education Afternoon; piloting a TSA ambassadors programme; developing information kits for NHS TSC clinics; training and capacity building for health, social care and education professionals; and finding funding for TSC research projects.
  • Collate and maintain all cases for support to form a bid library for regular re-use.

Researching and compiling prospect lists

  • Undertake research to compile tailored prospect lists for each case for support.

Developing a clear bid pipeline

  • Develop an ambitious bid pipeline that is reviewed and updated on a regular basis.
  • Project manage completion and submission of high quality, compliant bids and proposals within the required timescales.

Keeping accurate records of bids, outcomes and thank yous

  • Keeping accurate records of bids and grants made.
  • Logging the outcome of each bid or grant application.
  • Working with the Administrator, Head of Income Generation and Chief Executive (dependent on size of grant) to ensure that an appropriate thank you is sent when funds are received.
  • Working with the Head of Income Generation to send an update and thank you when the project that has been funded is complete.
  • Working closely with the Head of Income Generation to ensure that the relationship with the funder is appropriately stewarded.

Reviewing decisions to learn and improve

  • Review grant and bid yes/no grant decisions on a quarterly basis to continually learn and improve the TSA’s performance in generating income.
  • Make recommendations to the Head of Income Generation on future cases for support, potential prospects and the bid pipeline based on learning from this monitoring and evaluation.

Identifying opportunities for statutory and institutional investment

  • Working closely with the Chief Executive, Head of Income Generation and Head of Research, undertake research to identify potential sources of major income from statutory and institutional investors such as Government departments, grant-making organisations such as the Big Lottery and Comic Relief, corporate funders, livery companies and healthcare research funding agencies.
  • Working closely with the Chief Executive, Head of Income Generation and Head of Research to develop initial scopes for projects, pilots and pieces of work that can be developed into successful bid proposals and presented to funding bodies.

Supporting broader fundraising activities

  • Working as part of a small fundraising team, you will enjoy taking on new challenges and happy to work flexibly as the TSA develops a balanced portfolio of income across regular givers, trusts and foundations, corporate partners, major donors and legacies.
  • Attend a small number of TSA and 3rd party charity events, including for example the TSA’s international conference on TSC and fundraising events such as the Great North Run. Tasks could include time on the reception desk, directing attendees between sessions or manning a cheer point. You will be able to take time off in lieu for attending evening and weekend events.

Other requirements of the post

The post holder must be prepared to work flexibly to meet the needs of the organisation.  This will entail occasional evening and weekend work.  Regular travel within the UK will be needed for team meetings, TSA events and training provision.  This would normally require access to a car (mileage will be paid) or travel by public transport (tickets will be paid).

A DBS disclosure will be required prior to taking up post.

Person specification

Essential

  • Minimum three years as a professional fundraiser in a relevant role or transferrable skills from a similar role
  • Proven track record in writing high quality, compelling and successful grant and bid applications
  • Previous experience of researching and managing bid pipelines
  • Ability to develop strong working relationships with senior colleagues to secure their input to scoping, drafting, reviewing and signing off documents
  • Excellent written skills including accurate and high-level document presentation skills
  • Excellent proofing and checking skills, with close attention to detail
  • Excellent IT skills, including MS Word, Excel, Outlook, internet use and database skills.
  • Ability to work to deadlines and appropriately prioritise competing deadlines
  • Strong time and project management skills
  • Self-motivated with ability to plan, prioritise and manage own workload
  • Effective team player who is willing to take on new challenges and work flexibly to meet the needs of the charity
  • Experience of monitoring and evaluating outcomes of grant and bid applications
  • Experience and understanding of working with financial data where projects require overseeing, impact reports and outcomes presented.
  • Educated to degree level or equivalent

Desirable

  • Committed to improving lives of people living with rare diseases, learning disabilities or autism
  • Experience of writing bids in health or social care sector
  • Experience of using fundraising databases (ideally Harlequin)
  • Experience of identifying a pipeline of trusts and foundations that will fund health research
  • Experience of identifying potential sources of major income from statutory and institutional investors
  • Understanding of the relevant regulatory frameworks, Institute of Fundraising’s Codes of Conduct, Fundraising Regulator guidelines and Gift Aid regulations

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.