Here is the text in full of the letter published in today’s The Times newspaper, in which NHS consultants express their shock and disappointment at NHS
England’s recent decision regarding the provision of Everolimus for inoperable SEGA tumours.

Please take a few minutes to read this – and if you have not already emailed, or written a letter, to your own MP then we’d be very grateful if you would
take a few minutes to do so. Your input and support is invaluable.

More details on how to email your MP quickly and easily can be found here:

 

https://www.tuberous-sclerosis.org/new-tsa-news/nhs-england-devastating-u-turn-on-drug-treatment-for-brain-tumours