Register your place at the TSC patient conference – Understanding TSC-Associated Neuropsychiatric Disorders (TAND) – taking place at Belfast City Hospital on Friday 25 January 2019, 09:15 – 16:15.
The conference will feature a full day of varied and interesting talks and workshops from a wide range of TSC professionals including:
  • Prof Petrus de Vries (Professor of Child and Adolescent Psychiatry, University of Cape Town, South Africa)
  • Rachel Hardy (Genetic Counsellor, Belfast Trust)
  • Fiona O’Donnell (Community Support & Information Officer, The Special Educational Needs Advice Centre)
For more information on how to register, please contact Claire Kirk (TSA Advisor, Northern Ireland) at For those who are unable to make the event, we will update the TSC community via our various channels following the meeting.
The full agenda is as follows:
09:15 – Registration and coffee
10:00 – Chair: Prof Patrick Morison
10:00 – Overview of TSC (Rachel Hardy, Belfast Trust)
10:15 – Patient Perspective
10:30 – Introduction to TSC- Associated Neuropsychiatric Disorders (TAND) (Prof Petrus de Vries, University of Cape Town, South Africa)
11:30 – Coffee
11:55 – Local Support for Autism (Shirelle Stewart, The National Autistic Society)
12:15 – Emotional Regulation Tools for Young People with Autism (Rachel Ferguson, Middletown Centre for Autism)
12:45 – Patient Perspective
13:00 – Lunch
14:00 – Chair: Dr Deirdre Donnelly
14:00 – Patient Perspective
14:15 – Managing TAND: Current Treatments & Future Research (Prof Petrus de Vries, South Africa)
15:15 – Coffee
15:45 – Getting the Right Support in School for Children with Special Educational Needs (Fiona O’Donnell – SENAC (The Special Educational Needs Advice Centre)
16:15 – Conclusion of meeting (Louise Fish – Tuberous Sclerosis Association)