Today [Tuesday October 2] NHS England discussed the evidence that its Clinical Priorities Advisory Group (CPAG) will consider in November when it reviews the decision not to fund everolimus to treat epilepsy for people with TSC in England.
Thank you to all of you who have already signed our petition or written to your MP in support of our campaign. If you have not yet done so, please do as every single signature, letter and email makes a real difference. Everything you need to know about our campaign is here https://www.tuberous-sclerosis.org/ready-steady-write.
We will keep you updated as and when we know more. Please note we expect hear the result of CPAG’s November meeting either in December or possibly early in the New Year (2019).