We’re pleased to add another important member to the small TSA team. Welcome to Amy, the latest TSA recruit!

Amy joins the TSA as a TSA Support Line Adviser, meaning that she’ll be part of our vital support services team. Amy shared the following to say ‘Hello’ to the TSC community:

“Hi everyone! My name is Amy and I’ve joined the TSA as a Support Line Advisor.

I’ve always worked in roles involving helping people. I worked for 7 years in the control room for a fire service. In this role I would take 999 calls, dispatch crews and coordinate responses to large incidents. Although challenging, taking 999 calls was extremely rewarding, I would speak with people during some of their worst or scariest moments and keep them safe. I left this job after I had my daughter and moved to the Midlands to be closer to my family.

My next role was coordinating projects at a local charity, which involved supporting vulnerable adults in the community. During this time, I worked with people and their families who were isolated as a result of medical and mental health conditions, helping them to access services and get back into the community when possible. I also worked with a team of volunteers who did things such as befriending and shopping for those who were housebound. I really loved speaking with people who we supported, hearing their stories and supporting them where needed.

I have a daughter who is autistic, and we’re on our own journey exploring whether there is a genetic condition causing other medical symptoms. At times it‘s been challenging emotionally and practically, so I really empathise with other individuals and families who are on similar journeys.

My spare time is spent with my family. My daughter is a great explorer, so we spend a lot of time outdoors with our dogs. We live close to a canal and a river, so we’ve just bought some paddle boards and are planning some more family adventures. I also love to read and crochet when I can. This year, I’m also hoping to become more involved with my local SEND community at their events and volunteering.

I’m passionate about ensuring that the TSC community is treated fairly and have access to great healthcare, education and activities. I’m really thrilled to be a part of the TSA and I’m really looking forward to getting to know the TSC community on the support line and at upcoming events.”

Make a one off or regular  donation

£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow