The Tuberous Sclerosis Association (TSA) is delighted to announce funding for Dr Charlotte Tye (Department of Child & Adolescent Psychiatry, Kings College London) and her team to extend the Early Development in Tuberous Sclerosis (EDiTS) Study.

EDiTS aims to better understand how the development of young children living with TSC differs to those who do not live with the condition. The new funding provided to Dr Tye and her team will allow exploration into the relationship between the physical symptoms of TSC – such as epileptic seizures and brain tumours – and the development of Attention deficit hyperactivity disorder (ADHD) and/or Autistic Spectrum Disorder (ASD).

A grant of £10,000 was awarded to Dr Tye for this incredibly important work from the Hospital Saturday Fund. The TSA would like to put forward their deepest thanks to the Hospital Saturday Fund for their wonderful generosity.

Louise Fish (Chief Executive, TSA) and Paul Jackson (Chief Executive, Hospital Saturday Fund)

Dr Tye commented: ‘This funding comes at a key time as the EDiTS Study cohort enter toddlerhood, to provide fundamental insights into early development and its links with later behaviour in TSC. Thank you very much to the TSA for your continued support of the EDiTS study’.

The Hospital Saturday Fund is a registered charity whose aims are to provide assistance through its charitable giving. Organisations and individuals with high philanthropic aims can join the Hospital Saturday Fund on their mission to help those with critical and/or immediate health needs and supporting medical research.

In addition to securing funding from the TSA, the team at Kings College London have also been awarded a research grant from the Baily Thomas Charitable Fund. This funding will allow the EDiTS study to continue collecting information in pre-school children who live with and without TSC, through a mobile app. It is hoped that the data will help to increase our understanding of the reasons why mental disability and issues with brain development are more common in children living with TSC.

ADHD and ASD in people living with TSC are both part of the group ‘TSC-Associated Neuropsychiatric Disorders (TAND)’. TAND is an important and often overlooked area of TSC research and support. Click here to find out more about TAND.

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