Greg Mulholland MP has secured a parliamentary debate entitled ‘Access to drugs for ultra-rare diseases’! It’ll be next Tuesday, 16th June, 2.30pm-4pm, so a whole hour and a half of MPs raising their concerns directly with George Freeman.You can help by emailing and/or tweeting your MP. You can also join a Twitter Chat hosted by Greg on Monday 15th June 2.00-4.00pm,
Some draft tweets you can use:
- Will you attend Westminster Hall debate next Tues, 2.30pm-4pm, and get @NHSengland to #fundourdrugsNOW?
- Ministers must hold @NHSengland to account- will you attend Westminster Hall debate next Tues, 2.30pm-4pm? #fundourdrugsNOW
- People failed by @NHSengland bureaucrats. Will you attend Westminster Hall debate next Tues, 2.30pm-4pm? #fundourdrugsNOW
- Will you attend Westminster Hall debate next Tues 2.30pm-4pm & stand up for people with ultra-rare diseases? #fundourdrugsNOW
You can write to your MP HERE
or you can use this template letter:
Unmet Need for Services & Treatment for Tuberous Sclerosis Complex (27 KB)
