At the TSA Annual General Meeting 2026, votes will be cast on potential new TSA trustees to join our Board of Trustees. You can find more about the potential trustees below

The TSA Annual General Meeting 2026 will take place on Wednesday 18th November, 13:00 – 14:00, including a special discussion on TAND by Prof. Petrus de Vries and Prof. Anna Jansen (register here).

The Board of Trustees is responsible for the overall strategy and focus of the TSA, agreeing on what the charity’s priorities are in pursuit of it’s ultimate aim (a cure for TSC). It’s important that the Board of Trustees possesses a wide range of abilities and experiences, particularly when it comes to TSC.

New potential Trustees being voted in

Louise Beagon

Louise is Irish and spent a year studying in Belgium as part of the Erasmus exchange programme during her degree in Biochemistry. She went on to enjoy teaching mainly Chemistry and some Physics, Biology and French at schools in England for twenty years. Louise enjoys playing piano, swimming and tennis. She lives in Leicestershire and spends as much time as possible in Cornwall.

Louise has a particular passion for supporting individuals and families affected by Tuberous Sclerosis Complex. This is a cause very close to her heart, as her 22-year-old daughter lives with the condition. Through her personal experience, Louise has developed a strong understanding of the challenges faced by families affected by TSC and is committed to raising awareness, sharing experiences and helping others feel supported and understood, especially during the move from children’s to adults’ services. She hopes to use both her personal insight and enthusiasm to make a positive difference to the TSC community.

Gloria Clark

Gloria has had a varied career in industry, the NHS and charities, including the Patients Association and Citizens Advice. For the last nine years she has been a trustee of Genetic Alliance UK, the alliance of 240 charities supporting people with rare and genetic disease; and she is also a trustee of four other charities. She has skills in social research, strategy, finance, marketing and governance. She has a daughter with TSC and has been a member of the TSA for over 20 years. She very much values the support the TSA provides, as well as the research it funds to extend medical understanding and develop treatments, all to improve the lives of people with TSC and their families. She would be delighted to be involved as a trustee.

Louise Fish

Louise is Chair of NHS England’s Rare Disease Advisory Group, Interim Chair of the Department of Health and Social Care’s UK Rare Diseases Framework Forum, and Chair Elect of charity Gene People. Louise has experience running charities and brings particular knowledge of strategy, governance, financial sustainability, evidence-based healthcare, and communications. As a Trustee of the TSA, Louise would be particularly interested in the ‘help for today’ aspects of the charity’s work through developing easy-to-read information about the condition, running a supportive helpline, and maintaining strong links with TSC clinics across the UK through the TSC Rare Disease Collaborative Network. As a former Chief Executive at the TSA, Louise met lots of people living with TSC, their families and the healthcare professionals who work with them. She is passionate about supporting and building the charity so it can support the warm, welcoming, and fantastic TSC community for many years to come.

Dr Ross Kemble

Dr Ross Kemble is Associate Director of the Leadership and Management Academy at the University of Suffolk, where he provides strategic leadership for postgraduate business and management education. He has extensive experience in higher education, academic leadership, governance, quality assurance and organisational leadership. Ross also serves in a range of external quality assurance, doctoral examining, and advisory roles across the UK higher education sector. As a Trustee of the TSA, Ross would bring expertise in governance, strategy, stakeholder engagement, and organisational development.

Ross has a personal connection to the TSA’s mission through his daughter, who lives with Tuberous Sclerosis Complex, and is a passionate advocate for improving support and outcomes for individuals and families affected by the condition. Ross fundraises each year for the charity, recently completing a 100-mile ultra marathon and will continue pushing the boundaries to raise money for the charity.

Existing Trustees being voted in for another term

Dr Frances Elmslie

Frances Elmslie is a Consultant Clinical Geneticist at St George’s University Hospital in Tooting, South West London. Dr Elmslie has been running the Tuberous Sclerosis Complex clinic at St George’s for the last 23 years with colleagues Chris Kingswood, Nick Annear and Lydia Israel, supported by many others from different specialities.  Her main interests are in early diagnosis and management of TSC.  In addition, Dr Elmslie leads the NHS England Tuberous Sclerosis Complex Rare Disease Collaborative Network, working hand in hand with the TSA.  As a Trustee of the TSA, she is particularly interested in governance and research, and is passionate about trying to improve the future for those living with TSC and their families.

Simon James

Simon is a retired Fellow of the Institute and Faculty of Actuaries. He has worked in actuarial roles in life insurance, pensions and helped design and launch an internet bank. Simon moved into professional education in 2007, joining BPP Actuarial Education, initially as a tutor. He taught and developed materials for various actuarial subjects including risk management, business finance, investments and communications. Until his retirement in 2025, he was Director of Actuarial Apprenticeships at BPP, leading all aspects of the Level 4 and Level 7 Actuarial professional apprenticeship programmes (rated “Good” by Ofsted). Simon is Treasurer & Trustee for his local village hall and also Trustee and Director for a multi-academy trust.