We’re updating our research strategy so that it better serves the TSC community and what’s most important in progressing our understanding of TSC as a condition. Stage one is now complete, with a lot of insights already gained

It’s important that our research strategy best reflects the most important priorities of the TSC community. To do this, the first step in our strategy update was to create an ideas board to gather the broad thoughts and feelings of people affected by TSC. We also did similar, but with professionals in the TSC community to understand their views.

We got a great response in all of this, helping us to better understand things like:

  • What are the most important unanswered questions in TSC
  • Where are not making enough progress in TSC research
  • What are the highest unmet needs in TSC

You can see the findings so far in our in-depth report here.

The next step is to gather these views into broad themes, allowing us to have an even clearer picture of what future research we fund should focus on.