Fantastic news from our friends in America! The Tuberous Sclerosis Alliance (TS Alliance) has announced that the U.S. Food and Drug Administration has approved the drug everolimus to treat partial-onset seizures in patients with tuberous sclerosis complex in America.
You can read all about this HERE. This is a great example of how by working together we can all affect change. Your campaigning voices and involvement in research really do make a difference.
NHS England and NHS Scotland will shortly be considering whether this drug will be funded for the same purpose in England and Scotland. Your responses to the recent public consultation will be heard by those making the decision.