Register your place at the TSC patient conference – Understanding TSC-Associated Neuropsychiatric Disorders (TAND) – taking place at Belfast City Hospital on Friday 25 January 2019, 09:15 – 16:15.
The conference will feature a full day of varied and interesting talks and workshops from a wide range of TSC professionals including:
  • Prof Petrus de Vries (Professor of Child and Adolescent Psychiatry, University of Cape Town, South Africa)
  • Rachel Hardy (Genetic Counsellor, Belfast Trust)
  • Fiona O’Donnell (Community Support & Information Officer, The Special Educational Needs Advice Centre)
For more information on how to register, please contact Claire Kirk (TSA Advisor, Northern Ireland) at claire.kirk@tuberous-sclerosis.org. For those who are unable to make the event, we will update the TSC community via our various channels following the meeting.
The full agenda is as follows:
09:15 – Registration and coffee
10:00 – Chair: Prof Patrick Morison
10:00 – Overview of TSC (Rachel Hardy, Belfast Trust)
10:15 – Patient Perspective
10:30 – Introduction to TSC- Associated Neuropsychiatric Disorders (TAND) (Prof Petrus de Vries, University of Cape Town, South Africa)
11:30 – Coffee
11:55 – Local Support for Autism (Shirelle Stewart, The National Autistic Society)
12:15 – Emotional Regulation Tools for Young People with Autism (Rachel Ferguson, Middletown Centre for Autism)
12:45 – Patient Perspective
13:00 – Lunch
14:00 – Chair: Dr Deirdre Donnelly
14:00 – Patient Perspective
14:15 – Managing TAND: Current Treatments & Future Research (Prof Petrus de Vries, South Africa)
15:15 – Coffee
15:45 – Getting the Right Support in School for Children with Special Educational Needs (Fiona O’Donnell – SENAC (The Special Educational Needs Advice Centre)
16:15 – Conclusion of meeting (Louise Fish – Tuberous Sclerosis Association)