Big Day 2019 - full agenda confirmed and event guide released Big Day 2019 is just over one week away and the Tuberous Sclerosis Association (TSA) is delighted to now share with you the final agenda for the day! Not only that, but we
Posted on 11th November, 2019.Clinical trials on using Epidyolex for TSC-related epilepsy are due to report in full in December 2019 at an epilepsy conference in America.We are expecting the company that make the drug to put in an application for a European license to
The Tuberous Sclerosis Association (TSA) is delighted to announce funding for Dr Charlotte Tye (Department of Child & Adolescent Psychiatry, Kings College London) and her team to extend the Early Development in Tuberous Sclerosis (EDiTS) Study. EDiTS aims to better understand how the development
Presentations from the Tuberous Sclerosis Association's (TSA's) Big Day 2019, our biggest event of the year, are now available to community members to view and download. Big Day 2019 welcomed individuals living with Tuberous Sclerosis Complex (TSC) and their family members to connect and
The TSA has extended the period for the TSC community from across the UK to share their concerns and hopes ahead of the upcoming launch of the UK-wide TSA support line. The TSC community can share feedback with the TSA through a support line
The latest work of Dr. Kacper Rogala (Postdoctoral Fellow, Whitehead Institute, United States) and his team into the mechanisms of TSC cells was recently published in the research journal science. The Tuberous Sclerosis Association (TSA) proudly funds Dr Rogala’s research and is pleased to
The Tuberous Sclerosis Association (TSA) is looking for a self-motivated, experienced and effective fundraising manager, who is ambitious about generating income to help people living with Tuberous Sclerosis Complex (TSC) and their families and drive research into this rare genetic condition.The position is home-based, part-time
The TSA office will be closed for the 2019 Christmas period on Wednesday 25 December 2019, Thursday 26 December 2019 and Wednesday 1 January 2020. Enquiries received on these days will be answered as soon as possible once the office reopens. Normal working hours
After seven years of hard work and dedication, the TSA is to say a heartfelt thank you and goodbye to Tanya Darnton (Fundraising Manager) in early January, when she moves on to a role away from our charity. Tanya has done an incredible job
The Tuberous Sclerosis Association (TSA) is delighted to confirm dates for community events in 2020, including extra Family Fun Days! Get them marked in your calendar! By sharing the dates and locations of TSA community events as early as possible, we hope to make
