We are pleased to confirm that clinician one-to-one registrations are now open for the Big Day 2019. Please read the information on this page carefully to learn how to register for clinician one-to-ones. What is Big Day? Big Day is our biggest event of
The TSA is currently recruiting for a Support Line Adviser to join their Support and Information team. The job description and person specification can be found below. Further information, including how to apply, is available via CharityJob. Â Job description and person specification Â
The Tuberous Sclerosis Association has a new website - tell us what you think! If you logged onto our website recently, you will have seen that it is now new and improved! We are delighted to have created this new website for the TSC
Big Day 2019 - full agenda confirmed and event guide released Big Day 2019 is just over one week away and the Tuberous Sclerosis Association (TSA) is delighted to now share with you the final agenda for the day! Not only that, but we
Posted on 11th November, 2019.Clinical trials on using Epidyolex for TSC-related epilepsy are due to report in full in December 2019 at an epilepsy conference in America.We are expecting the company that make the drug to put in an application for a European license to
The Tuberous Sclerosis Association (TSA) is delighted to announce funding for Dr Charlotte Tye (Department of Child & Adolescent Psychiatry, Kings College London) and her team to extend the Early Development in Tuberous Sclerosis (EDiTS) Study. EDiTS aims to better understand how the development
Presentations from the Tuberous Sclerosis Association's (TSA's) Big Day 2019, our biggest event of the year, are now available to community members to view and download. Big Day 2019 welcomed individuals living with Tuberous Sclerosis Complex (TSC) and their family members to connect and
The TSA has extended the period for the TSC community from across the UK to share their concerns and hopes ahead of the upcoming launch of the UK-wide TSA support line. The TSC community can share feedback with the TSA through a support line
The latest work of Dr. Kacper Rogala (Postdoctoral Fellow, Whitehead Institute, United States) and his team into the mechanisms of TSC cells was recently published in the research journal science. The Tuberous Sclerosis Association (TSA) proudly funds Dr Rogala’s research and is pleased to
The Tuberous Sclerosis Association (TSA) is looking for a self-motivated, experienced and effective fundraising manager, who is ambitious about generating income to help people living with Tuberous Sclerosis Complex (TSC) and their families and drive research into this rare genetic condition.The position is home-based, part-time
