After seven years of hard work and dedication, the TSA is to say a heartfelt thank you and goodbye to Tanya Darnton (Fundraising Manager) in early January, when she moves on to a role away from our charity. Tanya has done an incredible job

The Tuberous Sclerosis Association (TSA) is delighted to confirm dates for community events in 2020, including extra Family Fun Days! Get them marked in your calendar! By sharing the dates and locations of TSA community events as early as possible, we hope to make

The TSA are delighted to confirm the first sessions that will be held at Outlook 2020, taking place 18 April at the Radisson Blu Hotel, Durham! The organising team, including our community committee, have been working hard to ensure that Outlook 2020 is a

A pilot of the upcoming TSA support line will commence on Monday 10 February, in anticipation of the service’s full launch in April 2020. Any community members contacting the TSA’s support services from Monday 10 February will access the pilot scheme. As part of

Rare is many. Rare is strong. Rare is proud . 29th February 2020 marks the 13th annual Rare Disease Day. Rare Disease Day, a global movement highlighting the voices of people affected by rare diseases around the world, is a vital opportunity to

Last updated: 16 December 2021. This page will continue to be updated. . It is normal to have have questions or feel anxious about how covid-19 may affect you or a loved one who lives with TSC. The TSA is here for you,

There are things that you can do to try and maintain positive wellbeing during the coronavirus outbreak, particularly if you are being asked to self-isolate or participate in social distancing. Here, we have provided a list of strategies and mechanisms to reduce feelings of

Last updated: 17 February 2021. This page will continue to be updated with the latest information if advice changes. You or someone that you know might have received a message from the UK Government about ‘shielding'. Shielding is a measure to protect people who

The global coronavirus pandemic is continuing to affect all aspects of daily life, including at the TSA. Our amazing charity, committed to improving the lives of people affected by TSC across the UK, has been assessing the effects of the spread of coronavirus on

Born to be Different is an ongoing programme on Channel 4 that follows the lives of six families affected by different conditions. Paula Davis and her family, including son William who lives with TSC, are one of the families participating in the programme. We