News and events
The latest announcements and news from the Tuberous Sclerosis Association
TSA Ambassador Marie James attends Senedd for Rare Disease Day 2017
Huge thanks to Carmarthenshire-based TSA Ambassador Marie James, and her
Carers Assessments – help in Scotland
A carers assessment is a chance to discuss your needs
New booklet for young people with autism in Scotland
Scottish Intercollegiate Guidelines Network (SIGN) -Â has developed a new booklet
London Marathon 2017 – one month to go!
It's just one month to go until the Virgin Money
Bears4Rare campaign for fair and fast access to treatment for rare disease patients
Rare conditions affect approximately 1 in 17 people in the
How TS research is changing cancer treatment
If you are interested in research into TSC, and its
Rare Disease Day 2017 ‘We’ve come a long way – but there’s more to do’
 This year’s Rare Disease Day focus is research. Today, February
TSA signs SHCA letter to Prime Minister re: rationing of treatment
The Observer newspaper has run an article on a letter
White Stuff volunteers join #TeamTSA
We were recently joined by nine employees from top fashion
Jayne Spink, CEO, leaves to take the lead at Genetic Alliance UK
Our first ever CEO, Dr Jayne Spink, will be stepping
London Marathon 2017 – introducing #TeamTSA
Today we'd like to introduce to you our amazing London
​Everolimus granted European Licence for refractory epilepsy in adults and children with TSC
Everolimus (trade name Votubia®) has been approved by the regulators