News and events
The latest announcements and news from the Tuberous Sclerosis Association
How we bring lived experience into research
Through Patient and Public Involvement and Engagement (PPIE), people
Better understanding TSC and autism
New findings from the long-running TS 2000 Study, which
Janet’s incredible Tour de Mont Blanc challenge
Janet Peto recently completed an amazing fundraising challenge, completing
Better understanding the blood-brain barrier in TSC
Dr Claire Behan (St James' Hospital Dublin) is a
Life as a TSC researcher
Amanda Barbanoj (Senior Research Fellow, University College London) recently
Ketogenic diets and seizures: what new research tells us
A new review brings together evidence on how ketogenic
Introducing RARE TSC: The first dedicated UK-wide TSC registry
We are excited to announce the launch of RARE
Rare Disease Day 2026 Parliamentary Reception
The TSA’s Joint Chief Executive, Dr Pooja Takhar, attended
Major changes for SEND in England: What it might mean for you
The UK Government has published new plans to reform
LeDeR update highlights early deaths in autistic people and people with learning disabilities
Please note: This article discusses bereavement and suicide and
TSC and relationships
For people living with TSC, healthy relationships with other
What the budget might mean for you
The recent government budget includes several announcements that may