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      • Meet your research committee
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    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
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      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
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    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • Information & support
    • TSC Overview
      • What is TSC?
      • Diagnosis
      • TSC and genetics
      • Treatment and management
    • Get help and support
      • Contact the TSA Support Line
        • Meet the TSA Support Line Advisers
        • TSA Support Line feedback form
      • Carer information and support
      • How to be referred to an NHS TSC clinic
        • Find a local NHS TSC clinic
      • TSA video hub
      • Access benefits and financial aid
        • TSA Support Fund
    • How TSC affects the body
      • Physical effects
        • Epilepsy
        • Brain
        • Heart
        • Lungs
        • Skin
        • Eyes
        • Kidneys
        • Other areas
      • Wider effects (TAND)
        • Intellectual ability
        • TSC-Associated Neuropsychiatric Disorders (TAND)
        • Sleep problems
  • Life with TSC
    • Living with TSC
      • TSC stories
      • New diagnosis
      • Living well
      • Siblings
      • Education
      • Employment
      • Housing
      • Holiday and leisure
    • TSC at different life stages
      • TSC and family planning
      • When TSC is suspected or diagnosed during pregnancy
      • Early years and childhood
      • Adolescents and transition to adult life
      • Women’s health
      • Adult life
      • Planning for end of life
      • Bereavement
  • For professionals
    • Professionals
      • Healthcare professionals
        • UK TSC clinical guidelines
        • Personal Child Health Record (Red book)
        • Advice on medicines
      • Social care professionals
      • Education professionals
    • TSC conferences
      • International TSC Research Conference 2021
    • Educational materials
      • TSA professional training courses
      • BMJ learning modules
  • Research
    • How we deliver research
      • Research governance and policies
      • Research strategy
      • Meet your research committee
      • Common questions about our research
    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • YOUR input needed in new important facial angiofibroma survey

YOUR input needed in new important facial angiofibroma survey

A new survey, developed in partnership with the TSA, is investigating the experiences of living with facial angiofibromas (FA) and TSC. This research, conducted by a research agency on behalf of a pharmaceutical company, could uncover vital information on the needs of people who

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  • Covid-19 third and booster jabs: What you need to know

Covid-19 third and booster jabs: What you need to know

As we have done throughout the covid-19 pandemic, the TSA is working hard to provide clear and easy to understand information regarding covid-19 booster and third jabs. Here, we provide an overview on both jabs, and what they might mean for the TSC community.

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  • YOUR voice is needed to help us achieve access to Epidyolex®

YOUR voice is needed to help us achieve access to Epidyolex®

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  • Festive greetings card design 2021 – Competition winner confirmed!

Festive greetings card design 2021 – Competition winner confirmed!

This year, the TSA has re-introduced its popular festive greeting card design competition, giving one lucky person the opportunity to have their festive design printed and sold as part of our range of cards and goodies during the holiday season. We're now delighted to

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  • TSA Annual General Meeting 2021

TSA Annual General Meeting 2021

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  • Sir David Suchet CBE performance to be dedicated to the TSC community

Sir David Suchet CBE performance to be dedicated to the TSC community

The TSA is delighted to announce that the final London matinee performance of Sir David Suchet CBE’s latest West End show, Poirot and More, A Retrospective, will be dedicated to the TSA and the TSC community. Taking place on Saturday 22 January at

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  • TSA Annual General Meeting 2021: Recording now available

TSA Annual General Meeting 2021: Recording now available

The TSA's Annual General Meeting (AGM) 2021 recently took place. A recording of the meeting is now available, for those in the TSC community who were unable to join live. The AGM 2021 event recording can be found below and here. Viewers may also

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  • TSA says a fond farewell to Kathryn

TSA says a fond farewell to Kathryn

After six years of hard work and dedication, the TSA is to say a heartfelt thank you and goodbye to Kathryn Worden (Fundraising Manager) this month, when she moves on to a role away from our charity. Kathryn has done an incredible job during

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  • The Big Give is LIVE – double-value donations for one week only

The Big Give is LIVE – double-value donations for one week only

***Thanks to your incredible generosity we've hit our Big Give target, meaning that the TSA Support Fund can operate throughout all of next year. Although donations through The Big Give will no longer be doubled, please continue to kindly donate through

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  • New phase of EDiTS study now open to preschool participants

New phase of EDiTS study now open to preschool participants

The Early Development in Tuberous Sclerosis (EDiTS) study, which could lead to important findings about the development of children with TSC, has entered a new phase and is seeking participants. The EDiTS study team - part-funded by the TSA - are looking for children

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The TSA,
Courtenay House,
Pynes Hill,
Exeter,
EX2 5AZ

 

Support enquires:

0808 801 0700
support@tuberous-sclerosis.org

 

Office enquires:

0300 222 5737
Admin@tuberous-sclerosis.org

 

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The Tuberous Sclerosis Association is a company limited by guarantee. Registered in England and Wales no. 2900107.
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