The TSA is incredibly sad to hear the news, over the weekend of January 13/14 2018, that TAND researcher Loren Leclezio has passed away.   Working with Petrus de Vries at the University of Cape Town, Loren was funded by the TSA to undertake

Our Fundraising Team are busy planning our 2018 Tea & SCones for TSC appeal, and we would like you to go to your employer, school or club and ask them to put a date in their diary when they will hold their event between May

As you may be aware, there are new government regulations coming into place regarding the way companies and charities store and manage individuals personal information, such as your name and contact details. At TSA we welcome these changes. You may have heard about them already

This year we have five amazing people running for us in the Virgin London Marathon 2018 and they are as follows:   Jamie Wareing - Jamie from Preston, works for Preston City Council, and is running for #TeamTSA because his daughter Elsie, 2, has TSC. 

We have submitted feedback to NICE on the draft policy document regarding Everolimus for Epilepsy and the integrated impact assessment. Our CEO Maxine Smeaton has this week received notice that the Scottish Medicines Council is also about to open its consultation, and the TSA will

  People with hidden disabilities could soon have greater access to blue badges under plans announced by Transport Minister Jesse Norman on 21 January 2018. The proposals, which could see the biggest changes to the system since the blue badge was introduced in 1970, would

Wednesday February 28 is Rare Disease Day 2018 and we would like as many people as possible who are affected by TSC to mark this day to help raise awareness of rare diseases amongst the general public and decision-makers about rare diseases and their impact

  Have you ever left the GP not quite knowing what they have said to you? Treat Me Well is Mencap's new campaign to transform how the NHS treats people with a learning disability in hospital. The TSA is right behind Mencap's Treat Me Well campaign

The National Key Scheme (NKS) offers disabled people independent access to locked public toilets around the country. Toilets fitted with NKS locks can be found in shopping centres, pubs, cafes, department stores, bus and train stations and many other locations in most parts of the

  A new guide for parents to help improve the well-being of young children with learning disabilities has been published by Professor Richard Hastings, of the University of Warwick. You can read it by clicking HERE. Professor Hastings and his team are keen to hear