We are still looking for 2-3 volunteers that may be able to help us with the TAND focus group in London tomorrow 12 September 2017.  More details can be found at: http://www.tuberous-sclerosis.org/take-part-in-research/volunteers-required-for-research-focus-group-on-tuesday-12-september-2017  Volunteers would need to be able to reach our London offices by about 11am

We are very pleased to be able to confirm that Dr Sam Amin, of the TSC Supra Regional Clinic in Bath, will be available to undertake a limited number of 1-2-1 sessions with individuals or families during the #TSABigDay on Saturday, September 23 at the

One week today it's our #TSABigDay and, as well as Dr Chris Kingswood, and Dr Sam Amin, we are delighted to tell you today that Special Educational Needs expert Wendy Cliff will also be available for a limited number of 1-2-1 consultations on the day.  Please

We'd like to say a massive thank you to everyone who has read our draft five-year strategy and responded to our proposals via our consultation forms. Don't worry if you have not had a chance to do this, as there is still one week left

  Family Fund is the UK's largest charity providing grants for families raising disabled or seriously ill children and young people. They have just launched a new short video explaining their plans for the next few years so why not take five minutes to see

  Our Tea and SCones for TSC 2017 video, starring the wonderful Emily, George and Emma Pickles, has been entered in the Charity Film Awards 2017 and we would love to get as many votes as possible to help spread awareness of TSC and the

Do you have TSC and have had seizures within the past 6 months, or live and care for someone who does? The TSA have been approached by Adelphi Values about a survey they are undertaking on behalf of a pharmaceutical company looking at the impact

We want to make sure that each and every one of you, our valued supporters, are getting all that YOU want and need from the TSA. To help us to do this we share our latest information through our monthly TSA e-newsletter which you can choose to

Would you like to share your TSC research story? We are looking for people who have taken part in research into TSC who are willing to share their experiences about this - either on video or in writing - with us to mark Rare Disease

The TSA is delighted to announce that Maxine Smeaton is now in post as Interim CEO of the Tuberous Sclerosis Association. Maxine, former CEO of renowned medical research charity Blond McIndoe, will be leading the TSA for the next 12 months while CEO Louise Fish