This is an urgent call out to any families affected by TSC who have experience of using everolimus and have noticed an impact on their epilepsy. We want to hear from you if: you or someone you care for has taken part in clinical trials

Help us choose our TSA Christmas card designs for sale this year. We'd like you to help us to choose our Christmas card designs which we will be selling this year. The voting has started and if you go to our Facebook page here you

This is a message to say a huge thank you to everyone in our TS community who has responded so readily to our recent call for information about Everolimus and Epilepsy. Since we posted our urgent request for help on our website, our Facebook page,

Trial of Everolimus in the treatment of neurocognitive problems in TSC - TRON study The TRON study is now in its final few weeks of recruitment. It will finish recruiting at the end of August. The team are looking for about 6 more patients. The

The European Patients’ Academy for Therapeutic Innovation (EUPATI) supports people who access services, and third sector representatives, to understand and contribute to medicines research and development, and promotes the availability of accessible and reliable information for the public.  They are running free workshops in London, Leeds and

Do you have TSC with partial refractory seizures or live and care for someone who does? Then Adlephi Values want to hear about your experiences through this online survey. This research study aims to better understand what it is like to live with TSC and

We'd like to wish our Great North Run #TeamTSA members the very best of luck as they do their final preparations for this Sunday's event. Our Fundraising Officer Kathryn Harrison will be at our #TeamTSA cheering point located at Mile 12.5 with goody bags for all

We are very pleased to be able to confirm that Dr Chris Kingswood, Consultant Nephrologist and Head of Research Strategy for the TSA, will be available to undertake eight 1-2-1 sessions with individuals or families during the #TSABigDay on Saturday, September 23 at the Oxford

Please be aware that if you are attending our #TSABigDay and your child has a place in the #TSABigDay Creche, their booking forms, including important information about their care needs, must be sent to us via email or post by Wednesday 13 September.  The crèche

Please note that our #TSABigDay creche is now full and therefore we are unable to take any more bookings for this facility. So if you do still need to sort out childcare to enable you to attend the #TSABigDay then we would encourage you to