News and events
The latest announcements and news from the Tuberous Sclerosis Association
NHS England drug delay led to ‘absolutely preventable’ deaths
Exclusive: NHS England drug delay led to ‘absolutely preventable’ deaths
URGENT – YOUR HELP NEEDED
Prime Minister fails to recognise TSC patients in critical need
Access to medicine in England – We urgently need your help!
When Everolimus was licensed for the treatment of TSC more
Annual Conference 2014 resources:
On the 15th November 2014 the TSA hosted another successful
Your help urgently needed to secure NHS services and treatment for TSC
NHS England is currently failing to properly support patients
New Award to Support Career of Young Scientists
We are delighted to announce a new award to support
Petition on access to medicines in Wales referred on for Review.
Earlier this year we joined forces with the Genetics Alliance
Health Minister attends Northern Ireland Rare Disease seminar
The Northern Ireland government's draft implementation plan for the UK
Free information – Special Educational Needs and Disability (SEND) reforms
KIDS have launched a new suite of resources to support
Are you facing difficulties in accessing treatment?
EURORDIS (European Organisation for Rare Diseases) is conducting a survey
Design our TSA Christmas Card!
Design our TSA Christmas Card Are you 16 or under
Ann Hunt, MBE
It is with great sadness that we announce to the