Anna Gaunt

“Hello to everyone in the TSC community! I’m Anna and I’m the Support Line Manager at the TSA.

I have worked in a range of information roles and have also written for various publications, all of them focused on disability, health and wellbeing – my specialisms for many years. I have been a support line contact for another health charity for the past four years, giving me an insight into how best to support people living with complex health conditions, like TSC.

I am also on a steering group for research projects into healthcare, which has allowed me to help ensure that the voices of people living with different conditions are heard.

My hobbies include exploring the amazing countryside near where I live in Derbyshire, enjoying a good book with a cup of tea (I’m a big bookworm!) and visiting cute animals at a nearby farm – I love seeing the goats as I’m an animal lover. I even have a house rabbit called Freddie, who keeps me busy!

I am very excited to be a part of the TSA team and to be a part of delivering the charity’s objectives of providing help for today and a cure for tomorrow.

But, most importantly, I’m looking forward to supporting people whose lives are affected by TSC and being a listening ear on the support line. I’m also excited to meet some of you at upcoming TSA events.”

– Anna

Amy Duncan

“Hello everyone! My name is Amy and I’m a support line adviser at the TSA.

I’ve always been passionate about roles that involve helping people. For 7 years, I worked in the control room of a fire service. There, I handled 999 calls, dispatched crews, and coordinated responses to significant incidents. Taking 999 calls, though challenging, was deeply rewarding. I had the privilege of speaking with individuals during some of their most distressing moments, helping to keep them safe.

My next role involged coordinating projects at a local charity. This focused on supporting vulnerable adults in the community. I worked closely with individuals and their families who felt isolated due to medical and mental health conditions. My goal was to help them access essential services and reintegrate into the community when possible. I collaborated with a dedicated team of volunteers who undertook tasks like befriending and shopping for those confined to their homes. Engaging with the people we assisted was a highlight for me, as I cherished listening to their stories and offering necessary support.

On a personal note, I have an autistic daughter. We’re navigating our unique journey, exploring the possibility of a genetic condition that might be causing her other medical symptoms. The path has, at times, been emotionally and practically challenging. This experience allows me to deeply empathize with other families on similar journeys.

In my leisure time, I cherish moments with my family. My daughter, with her adventurous spirit, often leads us outdoors accompanied by our dogs. Living near a canal and river has inspired us to invest in paddleboards, laying the foundation for more family escapades. I also indulge in reading and crocheting whenever time permits. I’m driven by a passion to ensure that the TSC community receives equitable treatment and has access to quality healthcare, education, and activities.”

– Amy