Kayla Grant

Kayla ran the AJ Bell Scottish half marathon on 5th October. This was her first half marathon and she smashed it, completing it in 2hrs 37 mins. A few sore muscles the following week but she loved every minute of it. Kayla’s motivation is her son, Nathan who has TSC.

Total raised £1,131

Luke & Hayley

Luke & Hayley have done various fundraising events this year, the most recent was a football tournament all in Esme’s memory. In November 2024 they sadly lost their daughter, Esme James at 35 weeks pregnant. They received the devastating news that she was diagnosed with TSC.

Total raised £12,516

Annmarie and Steve Cotton

Annmarie and Steve have been doing a yearlong challenge through 2025. This has consisted of running 2025k between them throughout 2025. Their motivation is their lovely daughter Esme who has the TSC condition and Annmarie is also one of our valued trustees.

Total raised £2,134

Matt Dolan

Matt raised an amazing £1,185 for the TSA by doing a Sky dive in July. It was something on his bucket list and said after the event that everyone should do it at least once in their life. Matt’s motivation is his sister, Jenny who has TSC.

Total raised £1,185

Ross Kemble

Ross and his friend Steve took on the epic challenge of the Stour Valley Path Ultra marathon, covering a staggering 100km. 
Ross’ daughter Sennen was the inspiration for his amazing fundraising efforts. In November 2023, Sennen was diagnosed with Tuberous Sclerosis Complex (TSC) after experiencing seizures (infantile spasms) as a baby. 
Ross completed this mega challenge in 14hrs and 42 mins

Total raised £6,697

Stewart & Emma

This was a family affair, Stewart and Emma along with Emma’s cousin Lindsey Davie, her uncle Keir Davie and stepdad Danny Letford did the Edinburgh Kiltwalk on Sunday 14th September.  They completed the 33.59km course in 7 hours and 7 minutes. Their motivation is their daughter Macie who has been diagnosed with TSC and they want to help raise awareness and funds to support families like them in the TSA community. 

Total raised £4,240

Fedalmia and Gerry O’Gorman

Fedalmia and Gerry O’Gorman held a fantastic music fundraising night as part of a Guitar Society of Northern Ireland meeting on 30th April. Gerry had made some CD’s of his music and people were able to make a donation in exchange for a CD. Their inspiration for the event was their little granddaughter Ruby, who is almost four years old and affected severely by TSC. Ruby is the light of her family’s life.

Total raised £325

In memory of Hattie Louise Storey

The fantastic family and friends of Hattie Louise Storey’s ran the Leeds half marathon in May this year. This included Hattie’s Dad, Chris, her uncle Oliver, her godparents, friend Ryan and others. They ran in memory of Hattie Louise Storey big sister to Elmer, Daphne and Felicity. The family said “She might not have said a word but love is the loudest presence in the room”.

Total raised £13,350

Miriam

Miriam took part in the Swansea University Half Marathon on 8th June 2025. Although this isn’t the first time that Miriam has raised funds for the TSA, it is the first time she has completed a half marathon. Miriam enjoyed the experience running for her sister who has TSC and said ‘the race itself was great, perfect weather conditions’.

Total raised £1,288

Richard Baker

Richard was inspired to raise money for the TSA after hearing that his work colleague’s son has TSC and is undergoing an operation soon. Richard braved the cold weather and took part in the London Winter Walk.

Total raised £419

Dean McBain

Dean and 18 members of his football team in Aberdeen, Scotland ran 100km in February. The final run took place on 28th February, where they all ran together to complete the challenge. One of these incredible players put forward the TSA, as one of his family members lives with TSC.

Total raised £3,000

Sarah Wade

Sarah held a fantastic charity gala dinner with a raffle and silent auction too with all funds going to the TSA. her motivation was her lovely nephew. Thank you for your continued support, it means the world to the TSC community.

Raised over £4,660

Karen & Richard Vennard

Karen & Richard Vennard took on the challenge of running the Cardiff half marathon in October to raise awareness and money for the TSA, as Elsie, their granddaughter has the condition. Not only did they raise an amazing £1,874. Karen also held 2 bake sales and raised an extra £300.

Total raised £2,174

Helen Kemble

Helen’s daughter Sennen has been diagnosed with TSC and she wanted to set herself a challenge to help raise awareness and money for the TSA. In September she ran Dedham 10k and in November she ran Hadleigh 10 mile race. Her other daughter and husband are also helping with her fundraising efforts.

Total raised £1,208

Cheng-Han Wu

Cheng-Han is taking on the Singapore Marathon 42.195KM in December for his son Joshua who has been diagnosed with TSC. Cheng-Han who has been training hard is looking forward to taking on the challenge this weekend and raising awareness for TSC and the TSA.

Total raised £908

Lou Caterall

Lou Caterall hosted the Never Give Up charity day at the Dolman Theatre in Newport to raise funds and awareness for the TSA. Lou held the event as her friend Holly is running the Cardiff half marathon later on this year and she wanted to support her friend and give her fundraising total a boost.

Total raised £1,500

Liam Salvidge and Liam Kettle

Liam Salvidge and Liam Kettle took on the incredible challenge of a skydive. They plucked up the courage to jump for Liam Kettle’s daughter Darcie who has TS. Darcie also attend to support and watch her dad and her uncle as they soared the skies to raise awareness and much needed funds for the TSA.

Total raised £2,040

Charles & Jackie Newlands

Charles & Jacqui took on the huge bucket list challenge of walking 110k of the Camino de Santiago walk. Jacqui said it was “such an amazing experience for them both & everyone was so friendly along the route.” Their reason for walking and raising much needed funds for the TSA is their beautiful nephew Noah who they said is a fun loving 2-year-old.

Total raised £6,369

Team TSA 2024

Our London Marathon Team TSA runners Barry, Daniel, Dwain, Isabella, Jamie, Martin, Megan, Robert and Stephen smashed their targets and supported each other as they passed through the finish line. Their dedication and passion was inspirational, the TSA staff team watched the race live, cheering them along and sending over messages of support.

Raised over £24,000

Katie Morris-Taylor

Katie ran the Birmingham Half Marathon in an incredible time of 3 hours and 25 minutes. Katie powered through to the finish line despite suffering an injury running up to the event. She is now taking a well earned rest but hasn’t hung up her running shoes yet! She has said she will be back again to take on the Birmingham Half Marathon for the TSA next year.

Total raised £705

Jo Woolley

Jo Woolley held a luxury ladies day event at Wellington Cricket Club to raise awareness of TSC. She wanted to support the TSA as her friend’s daughter has TSC. The glorious summer sun also turned up to the event where guests enjoyed a three course meal, live music and a raffle. The event was a huge success and Jo’s efforts were kindly matched funded by her employer Phoenix Group.

Total raised £1,586

Linda Smith

Linda has dedicated herself to raising funds for the TSA by organising quiz nights, bingos and raffles at her local pub and community centre for many years. She is a fantastic fundraiser and supporter raising awareness of the TSA and her funds from the bingo will often be accompanied by other donations from her friends.

Total raised £3,065

Holy Bleach

Holly took on the Brighton Half Marathon for her younger cousin Stevie who has been diagnosed with TSC. The TSA is a charity close to Holly and her families hearts and she was keen to raise funds and awareness by taking on this challenge. Despite tackling strong winds Holly enjoyed the marathon experience and crossed the finish line with no injuries.

Total raised £1,000

Tom Moult

Tom stepped into the boxing ring in memory of his friend Simon Johnson who sadly, took his own life. Simon’s sister has a granddaughter who had been diagnosed with TSC, Tom knew that Simon would definitely want him try and help his beloved family. The white collar boxing match was something out of Tom’s comfort zone, but he was ready to put up a fight for the TSA.

Total raised £1,208