The nights are getting longer and there's a frost in the air - it's definitely coming up to the festive season! As part of this, we're delighted to confirm that the TSA's festive cards and goodies for 2025 are now on sale!

Lucas Gutiérrez Lafrentz is a PhD researcher at the Vrije Universiteit Brussel and University of Antwerp in Belgium. His work forms part of the TANDem 2 project, and aims to explore the ethical dimensions of care for individuals with TSC Associated Neuropsychiatric Disorders (TAND).

For people living with TSC, healthy relationships with other people, including a partner, a friend, or family member, can be a huge source of support. But, challenges from TSC might bring extra challenges to these relationships It’s important that every relationship is built on

The recent government budget includes several announcements that may affect people in the TSC community. We thought it useful to give a run-down, now the dust has settled Ending the two-child limit Those claiming Universal Credit currently get a ‘child element’, which is an

A new UK study suggests that changes in some genes linked to TSC might trigger inflammation inside the body. This discovery adds a new piece to the TSC puzzle and could influence future research and treatment. We already know that TSC causes a growth-control

The nights are getting longer and there's a frost in the air - it's definitely coming up to the festive season! As part of this, we're delighted to confirm that the TSA's festive cards and goodies for 2023 are now on sale!

The first ever official international recommendations on the diagnosis and treatment of TAND were recently published. This is an important milestone in TSC-Associated Neuropsychiatric Disorders, but what will the recommendations actually mean for people with TAND? Published in Journal of Neurodevelopmental Disorders, the international

The TSA is proud to be a significant funder to TSC research around the world. We recently partnered with Epilepsy Research Institute UK to unlock completely new TSC research. The lead researcher of the project, Dr Amanda Almacellas Barbanoj, tells us all about her

An exciting new project has been launched to better understand different challenges in rare diseases. Led by Kings College London, researchers will focus on the rare diseases that are connected to part of the body called the 'mTOR pathway'. The TSA is proud to

We recently earned accreditation with the Patient Information Forum, which confirms that the information we provide is of very high quality The Patient Information Forum (PIF) is a non-profit organisation that reviews print and online information focused on health and care information. PIF award