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    • TSC Overview
      • What is TSC?
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      • Contact the TSA Support Line
        • Meet the TSA Support Line Advisers
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    • How TSC affects the body
      • Physical effects
        • Epilepsy
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      • Wider effects (TAND)
        • Intellectual ability
        • TSC-Associated Neuropsychiatric Disorders (TAND)
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  • Life with TSC
    • Living with TSC
      • TSC stories
      • New diagnosis
      • Living well
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    • TSC at different life stages
      • TSC and family planning
      • When TSC is suspected or diagnosed during pregnancy
      • Early years and childhood
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      • Women’s health
      • Adult life
      • Planning for end of life
      • Bereavement
  • For professionals
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        • UK TSC clinical guidelines
        • Personal Child Health Record (Red book)
        • Advice on medicines
      • Social care professionals
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    • TSC conferences
      • International TSC Research Conference 2021
    • Educational materials
      • TSA professional training courses
      • BMJ learning modules
  • Research
    • How we deliver research
      • Research governance and policies
      • Research strategy
      • Meet your research committee
      • Common questions about our research
    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • Information & support
    • TSC Overview
      • What is TSC?
      • Diagnosis
      • TSC and genetics
      • Treatment and management
    • Get help and support
      • Contact the TSA Support Line
        • Meet the TSA Support Line Advisers
        • TSA Support Line feedback form
      • Carer information and support
      • How to be referred to an NHS TSC clinic
        • Find a local NHS TSC clinic
      • TSA video hub
      • Access benefits and financial aid
        • TSA Support Fund
    • How TSC affects the body
      • Physical effects
        • Epilepsy
        • Brain
        • Heart
        • Lungs
        • Skin
        • Eyes
        • Kidneys
        • Other areas
      • Wider effects (TAND)
        • Intellectual ability
        • TSC-Associated Neuropsychiatric Disorders (TAND)
        • Sleep problems
  • Life with TSC
    • Living with TSC
      • TSC stories
      • New diagnosis
      • Living well
      • Siblings
      • Education
      • Employment
      • Housing
      • Holiday and leisure
    • TSC at different life stages
      • TSC and family planning
      • When TSC is suspected or diagnosed during pregnancy
      • Early years and childhood
      • Adolescents and transition to adult life
      • Women’s health
      • Adult life
      • Planning for end of life
      • Bereavement
  • For professionals
    • Professionals
      • Healthcare professionals
        • UK TSC clinical guidelines
        • Personal Child Health Record (Red book)
        • Advice on medicines
      • Social care professionals
      • Education professionals
    • TSC conferences
      • International TSC Research Conference 2021
    • Educational materials
      • TSA professional training courses
      • BMJ learning modules
  • Research
    • How we deliver research
      • Research governance and policies
      • Research strategy
      • Meet your research committee
      • Common questions about our research
    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • TSA Support Line Appeal: We need your support

TSA Support Line Appeal: We need your support

The TSA Support Fund is our emergency grant for people in the TSC community, providing emergency support when the financial costs of being affected by TSC become too much to handle. Following a massive number of enquiries, we're now struggling to keep the fund

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  • TSC and mental health: Rae’s story

TSC and mental health: Rae’s story

We recently asked the TSC community to share their experiences of TSC and mental health challenges. Rae, who is aged 21 and was diagnosed with TSC when they were one, took the time to tell us their story: "Hi, my name’s Rae, and I’m

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  • 60 seconds with… TSC researcher Kate Fifield

60 seconds with… TSC researcher Kate Fifield

TS2000 is a landmark study that's tracking how TSC develops throughout a person's life. It's hoped that TS2000 will help to identify factors that contribute to the way that intellectual, cognitive and psychological challenges happen in TSC. The study is now entering a new

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  • Managing behaviours that can be considered challenging

Managing behaviours that can be considered challenging

Tantrums, harm, and abuse are just some of the actions that fall under the category of "behaviours that can be challenging." This is a common obstacle in the lives of people with TSC. What are ‘behaviours that can be challenging’? A behaviour is deemed

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  • Participants needed for important TSC-related epilepsy clinical trial

Participants needed for important TSC-related epilepsy clinical trial

An exciting new clinical trial has opened in the UK, focused on TSC-related epilepsy. Named after the Greek goddess of calm seas, the Galene study is seeking people in the TSC community to take part. Basimglurant - the name of the potential medicine -

Read More
  • Hyftor receives UK marketing authorisation

Hyftor receives UK marketing authorisation

Topical sirolimus gel Hyftor has received marketing authorisation in the UK for TSC facial angiofibromas (growths and marks on the skin from TSC). This means UK decision-makers confirm that Hyftor has met their standards for safety, quality and benefit. Hyftor is a gel that

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  • 60 seconds with… TSC researcher Liezl Schlebusch

60 seconds with… TSC researcher Liezl Schlebusch

We caught up with TSC researcher Liezl Schlebusch about the importance of carer wellbeing and her upcoming TSA-funded study, Well-Beans for Caregivers. Liezl is a lecturer based at the Centre for Autism Research in Africa at University of Cape Town. There is a saying:

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  • Global TSC Awareness Day x Mental Health Awareness Week: Rebecca’s story

Global TSC Awareness Day x Mental Health Awareness Week: Rebecca’s story

As part of our work to highlight Global TSC Awareness Day and Global Mental Health Awareness Week, both of which started on 15 May, we asked the TSC community to share their experiences of TSC and mental health challenges. Rebecca, who is aged 24

Read More
  • New TSC research co-funded by the TSA revealed

New TSC research co-funded by the TSA revealed

The TSA is delighted to be partnering with Epilepsy Research UK to co-fund new, vital research into TSC-related epilepsy through the Fellowship Award. After a rigorous process of reviewing applications, we can now announce that Dr Amanda Almacellas Barbanoj has been chosen for the

Read More
  • Covid-19: Children aged 6 months – four years old to be offered spring vaccine

Covid-19: Children aged 6 months – four years old to be offered spring vaccine

Children aged between 6 months – four years old in England are to be offered a covid-19 booster vaccine this spring, if they are considered clinically vulnerable to the virus The news follows the recommendation from the UK Government’s Joint Committee on Vaccination and

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Pynes Hill,
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Support enquires:

0808 801 0700
support@tuberous-sclerosis.org

 

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0300 222 5737
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The Tuberous Sclerosis Association is a company limited by guarantee. Registered in England and Wales no. 2900107.
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