This year, the TSA has re-introduced its popular festive greeting card design competition, giving one lucky person the opportunity to have their festive design printed and sold as part of our range of cards and goodies during the holiday season. We're now delighted to
The TSA is delighted to announce that the final London matinee performance of Sir David Suchet CBE’s latest West End show, Poirot and More, A Retrospective, will be dedicated to the TSA and the TSC community. Taking place on Saturday 22 January at
The TSA's Annual General Meeting (AGM) 2021 recently took place. A recording of the meeting is now available, for those in the TSC community who were unable to join live. The AGM 2021 event recording can be found below and here. Viewers may also
After six years of hard work and dedication, the TSA is to say a heartfelt thank you and goodbye to Kathryn Worden (Fundraising Manager) this month, when she moves on to a role away from our charity. Kathryn has done an incredible job during
***Thanks to your incredible generosity we've hit our Big Give target, meaning that the TSA Support Fund can operate throughout all of next year. Although donations through The Big Give will no longer be doubled, please continue to kindly donate through
The Early Development in Tuberous Sclerosis (EDiTS) study, which could lead to important findings about the development of children with TSC, has entered a new phase and is seeking participants. The EDiTS study team - part-funded by the TSA - are looking for children
The Welsh Government has today (Friday 10 December) approved a recommendation from the All-Wales Medicines Strategy Group (AWMSG) that cannabidiol (brand name Epidyolex®) is funded within Wales for TSC-related refractory epilepsy, meaning that people living with TSC in Wales will be able to access
The UK Government has announced that people who are at a higher risk of serious illness from covid-19 – which includes some people in the TSC community – will be among the first in the world to access antiviral and antibody treatments for covid-19
New TSC research is looking at whether a type of talking therapy (called 'Acceptance and Commitment Therapy' or 'ACT') can improve the wellbeing of young people who live with TSC. The experts leading the research, which is part-funded by the TSA, are looking for
