In the current global situation, it is understandable to have concerns about how covid-19 may impact on a loved one’s stay in a residential home. This is especially true for those in the TSC community, and has been an emerging issue for some people

As new lockdown restrictions are introduced into England, guidance for the nation has been updated for the 'clinically extremely vulnerable'. A small number of people in the TSC community fall into this category. Those identified as 'clinically extremely vulnerable' will receive a letter that

Up to two million people in Scotland are now living under the strongest covid-19 restrictions, until 11 December at the earliest. Undoubtedly, this will include a large number of people in the TSC community. Areas including Glasgow are now in the 'Level four' tier

The TSA and St George's University Hospitals were proud to host 'Latest TSC research update: COVID-19, LAM, renal and TAND' on 25 November. The full recording of the session is now available to view online and below. Chaired by Dr Frances Elmslie (Consultant Clinical

Last updated: 11 October 2021 The TSA is working with TSC clinicians in the NHS to understand what priority groups for covid-19 vaccines could mean for the TSC community. Our understanding of these priority groups may change as more information becomes available from the

On Friday 11 December, the TSA were delighted to premiere Sir David Suchet's reading of The Night Before Christmas at a special virtual event, recorded especially for the TSA community. Now, Sir David's reading is available for all to enjoy. We encourage everyone to

The TSA welcomes confirmation that that people who travel from the UK to the European Union will continue to be eligible to receive medically necessary treatment if they fall ill while abroad. This will continue through the UK Global Health Insurance Card (GHIC), which replaces

The TSA has received a high number of enquiries through the TSA Support Line about covid-19 vaccines. Here, we explore some of the common questions that you have asked. The TSA Support Line has received questions including: How quickly can people living with TSC

Positive results from the EPISTOP trial - which is researching the potential benefits of early treatment with vigabatrin to prevent seizures in people living with TSC - have been published. EPISTOP is the first clinical trial to demonstrate a beneficial preventative treatment for any

New research has shown that metformin - a common medicine used in type 2 diabetes - can improve TSC-related epilepsy and reduce the size of SEGAs (subependymal giant cell astrocytoma non-cancerous tumours). The study could have important implications for the way that TSC is