The TSA is pleased to share our summary of the first ever UK clinical guidelines for TSC, which were published by Oxford University Press in QJM: An International Journal of Medicine last year. The UK clinical guidelines summary can be viewed and downloaded here: {module_literature

A new project co-funded by the TSA is to be carried out by Dr Elaine Dunlop and her team at Cardiff University. Here, we provide an overview of the new project and speak to Dr Dunlop about the research and her work in the TSC

The TSA is delighted to announce that a major worldwide project to help researchers and clinicians better understand and treat neuropsychiatric disorders of TSC patients has been awarded funding. Co-funded by the TSA and the King Baudouin Foundation, the project marks a significant milestone in

The Institute of Medical Genetics, Cardiff University, has set up a research project which hopes to further our understanding of the connection between kidney disease and Tuberous sclerosis (TSC). Why is this research being done? Many TSC patients also have kidney problems, but not all.

The 2019 Prudential RideLondon-Surrey 100 takes place 3-4 August and we can now introduce you to the fantastic #TeamTSA team who are taking on the challenge! The eight cyclists will put on their cycling gear to brave the 100-mile journey to raise funds for the

  The TSA is delighted to confirm that Big Day, our biggest event of the year, is back for 2019! Big Day 2019 will take place Saturday 2 November 2019 at the Nottingham Belfry Hotel.  Big Day is our chance to gather everyone in the TSC community

Today is Global TSC Awareness Day 2019, a landmark annual day for the entire TSC community. Louise Fish, Chief Executive Officer of the TSA, discusses how sharing individual stories about TSC can help push forward the global agenda on improving the lives of people affected

The TSA is excited to confirm that the Family Fun Day is back for 2019, taking place on Saturday 27 July and this year we are heading to Chester Zoo! The Family Fun Day is the perfect chance for families and children living with TSC

  Last month saw a fantastic turn-out for our annual Tea & SCones for TSC campaign. Here, we share some highlights of the week with you! Tea & SCones for TSC is all about drinking tea, baking/eating scones (or any treats you fancy) and

The TSA is delighted to host 'An Evening with David Suchet CBE' on Thursday 19 September at the prestigious National Liberal Club, London. During the black-tie fundraiser dinner, award-winning actor David Suchet CBE will reflect on an incredible stage and screen career, including his early