We are delighted to say that NHS England’s draft policy recommends funding the drug for patients aged two years or older with TSC-related seizures. The exact wording of the draft policy states that: “Everolimus may be given to patients aged two years and older

Ann Hunt was one of the founder members of the Tuberous Sclerosis Association and a pioneer of research into TSC. Dr Chris Kingswood, one of the TSA's Trustees, and himself award-winning researcher into TSC, has written this moving and inspirational tribute to her which is

Are you a budding rock star with TSC? Do you play in a band? And do you fancy recording a song for us? If you have answered 'yes' to these three questions, then please email sarah.roberts@tuberous-sclerosis.org with your name, age, address, phone number and details

Are you affected by TSC and autism and live in Wales? If so please take five to have your say on the Draft Autism (Wales) Bill. The Bill requires the Welsh Government to publish an autism strategy and guidance on how it should be used. Click

Epilepsy Action Family Camp is a residential adventure weekend which takes place from Friday 31 August to Sunday 2 September 2018.  It's a really exciting opportunity for young people with epilepsy, aged 8 to 18, and their families, to have a fantastic adventure in the

The TS Alliance organisation based in the United States of America, holds its World Conference every 4-5 years. This year's event is due to take place 26-29 July 2018 in Dallas, Texas.   http://www.tsalliance.org/2018-world-tsc-conference/  This year the TSA is offering funding for a member of the UK

Fantastic news from our friends in America! The Tuberous Sclerosis Alliance (TS Alliance) has announced that the U.S. Food and Drug Administration has approved the drug everolimus to treat partial-onset seizures in patients with tuberous sclerosis complex in America. You can read all about this

So London Marathon 2018 - what an incredible day! A huge #TeamTSA thank you to absolutely everyone who has supported us at this event in every way - and most of all to Kris Stafferton, Huw Knight, Graham Sale, Richard Vennard and Jamie Wareing who have more than done

Managing the family finances can be a challenge at the best of times and especially so when you are caring for children or young people with additional needs or disabilities. Contact - For Families with Disabled Children is calling on mums, dads and other family

Are you interested in helping shape TSC research and direct how the TSA funds research? If so; we are looking for an additional lay (community) member of our research committee (RESCOM). Please see the attached guide and form for how to apply.    {module_literature filter="item"