As this year draws to a close we'd just like to say a huge thank you to everyone who has supported the TSA in all aspects of our work throughout 2017.       It has been a momentous year for us with highlights

  NHS England and the Local Government Association have been working to understand the many additional barriers faced by children, young people and adults with a learning disability, autism or both and their families in raising concerns and complaints. They want to take practical steps

Just a brief message from all at the TSA to wish all our supporters and the TS community, once again, a very Happy New Year and to let you know that our festive close down period has now ended and we are back to our

  The TSA is incredibly sad to hear the news, over the weekend of January 13/14 2018, that TAND researcher Loren Leclezio has passed away.   Working with Petrus de Vries at the University of Cape Town, Loren was funded by the TSA to undertake

Our Fundraising Team are busy planning our 2018 Tea & SCones for TSC appeal, and we would like you to go to your employer, school or club and ask them to put a date in their diary when they will hold their event between May

As you may be aware, there are new government regulations coming into place regarding the way companies and charities store and manage individuals personal information, such as your name and contact details. At TSA we welcome these changes. You may have heard about them already

This year we have five amazing people running for us in the Virgin London Marathon 2018 and they are as follows:   Jamie Wareing - Jamie from Preston, works for Preston City Council, and is running for #TeamTSA because his daughter Elsie, 2, has TSC. 

We have submitted feedback to NICE on the draft policy document regarding Everolimus for Epilepsy and the integrated impact assessment. Our CEO Maxine Smeaton has this week received notice that the Scottish Medicines Council is also about to open its consultation, and the TSA will

  People with hidden disabilities could soon have greater access to blue badges under plans announced by Transport Minister Jesse Norman on 21 January 2018. The proposals, which could see the biggest changes to the system since the blue badge was introduced in 1970, would

Wednesday February 28 is Rare Disease Day 2018 and we would like as many people as possible who are affected by TSC to mark this day to help raise awareness of rare diseases amongst the general public and decision-makers about rare diseases and their impact