We are delighted to inform the TSC community, researchers, charity collaborators and volunteers that we have appointed our second ever CEO. Louise Fish has a genuine desire to improve services and support for people living with health conditions and their families, and this has been

Louise Fish is to join the Tuberous Sclerosis Association (TSA) as its new Chief Executive. Louise, a former Director of Communications at NICE, Director of Communications and Engagement at the NHS Confederation and,most recently, a Senior Director with Tonic Life Communications, will join the TSA

It's just 10 days to go until the Virgin Money London Marathon 2017 and our six amazing London Marathon #TeamTSA members are all getting ready to run for us at this iconic event, helping to raise funds to fight TSC as well as raising awareness

  Today we see Sarah, Darren, Nicholas A, Nicholas M, Neil, Steven and Graham - our amazing seven members of #TeamTSA - take on the Virgin Money London Marathon 2017. There is still time to read their full stories and to support them with their

  Today we are thrilled to able to tell you all that a massive £18,109 has been raised for us by our incredible seven #TeamTSA heroes of the 2017 London Marathon – Sarah Bell, Nicholas Annear, Nicholas Myerson, Darren Pascoe, Steven McCloy, Neil Henderson and

Do you want one of these beauties for yourself? If so, the ballot for the 2018 London Marathon opens today (1 May) for five days only at https://www.virginmoneylondonmarathon.com/en-gb/ Don't delay - sign up on today!

  Disability Rights UK (DRUK) project, I Can Make It, aims to improve the employment opportunities of young disabled people. Funded by Comic Relief, the project created two short films, showing young disabled people at work, talking about what work means to them. Disability Rights

#volunteersweek is coming up soon - 1 June to 7 June and we'd love to be able to share as many images as we can of all of you who have volunteered for us in any way - be that helping to raise funds, give

In the UK, 1 in 17 people will be affected by a rare disease at some point in their life: this amounts to approximately 3.5 million people. Rare, genetic and undiagnosed conditions are often life-long and serious, affecting multiple systems of the body. Many of

A new project has been launched by The Salvesen Mindroom Centre, in collaboration with The University of Edinburgh and The James Lind Alliance and the team behind it would love to get the opinions of as many people as possible.   Research Priorities for Learning Difficulties in Children and